Juvenile Chronic Fatigue Syndrome

by Adrienne Dellwo; Yakadzokororwa na Grant Hughes, MD

1 -

Chii Chidiki Chirwere Chisingaperi Chirwere Syndrome?

ONOKY - Eric Herchaft / Getty Images

Vakomana vechidiki vanoshaya simba (JCFS) zvakangoita sevanhu vakura vasina kukanganisa syndrome (CFS kana ME / CFS ), asi nemamwe maonero akasiyana. Zvakakosha kutarisa kuti chirwere ichi chinokanganisa sei vechidiki uyewo pane mamwe maonero avatsvakurudzi.

2 -

Kupera Kuneta Syndrome Basics

Usati watarisa pane zvakananga zveJCFS, zvinobatsira kuwana kunzwisisa kweCFS.

Kutsvakurudza kunoratidza kuti CFS inosanganisira kuderedzwa kwezvikamu zvakasiyana-siyana. Vatsvakurudzi vakawanda vanofunga kuti maitiro ezvirwere zvezvirwere zvezvirwere ndiwo anonyanya kuoma, asi chirwere chetsitsi uye endocrine (hormone) system inogonawo kubatanidzwa.

CFS inowanzotsanangurwa se "kuva nechirwere chisingafi." Mune zvimwe zviitiko, chirwere chechiratidzo hachina kuenderana nenguva, asi kune vamwe zvinowanzosiyana kubva zuva rimwe nerimwe kana vhiki kwevhiki. Vanhu vanogona kuva nekubatanidzwa kwezviratidzo zvakawanda, uye kazhinji zvakaoma kutenda kuti zviratidzo izvi chikamu chechimiro chimwechete.

CFS chirwere chinokakavadzana. Havasi vese vanopa utano vanotenda kuti iripo, uye pakati peavo vanotenda mairi, havasi vose vakadzidziswa nezvekuzviongorora nekuchibata.

Uyewo Ona:

3 -

Zviratidzo zveVaduku Vanopera Dambudziko Rokuneta Syndrome

Kusvika ikozvino, tsvakurudzo haisati yajekesa kana JCFS inowanzoita zviratidzo zvakasiyana-siyana kupfuura munhu mukuru CFS.

Kuneta kweCFS hakuna kufanana nevanhu vane hutano vanonzwa kana vakaneta. Icho chishuwo chakasiyana-siyana chinogona kuve chakanyanya kukanganisa. Uyezve, kuneta haisi iye chete chiratidzo.

Vanhu vazhinji vane CFS vane chiratidzo chinonzi post-exertional malaise, chinoita kuti vanyanye kuneta pashure pokunge vaita muviri uye zvinotora nguva refu kuti vadzoke kubva pakuedza. Somuenzaniso, munhu ane hutano uyo anotasva bhasikoro rekushanda zvakaoma sezvaanogona kwemaminitsi makumi maviri anogona kuita zuva rimwe chete mushure mezuva. Mumwe munhu ane CFS, kune rumwe rutivi, aisazokwanisa kudzokorora basa ravo kwemazuva maviri kana kupfuura mushure mekutanga kwekudzidzira. Vanokwanisawo kuneta kuneta, kupararira kwakapararira, kusina kunaka kwepfungwa uye zvirwere-semararamiro emazuva mazhinji.

Uyewo kuwanda kunokanganisa kusagadzikana, izvo zvinowanzozonzi "uropi hwehuropi." Inogona kusanganisira zvinetso nekucherechedza, kurangarira kwenguva pfupi, kutaura kwemashoko, kuchengetedza izvo zvinowanikwa uye nzvimbo yekugara.

Izvi zviratidzo chete zvinokonzera kuti vamwe vanhu vadzivise, uye vanogona kuva nezvimwe zviratidzo zvakare. Zvimwe zviratidzo zvinowanzoonekwa zveCFS zvinosanganisira:

Unofreshing hope
Kuzvidya mwoyo, izvo zvidzidzo zvinoratidza zvinogona kunyanya kuitika muJCFS
Dhimzinesi paimire (yakadanwa kusagamuchirwa kwemasitori kana kuti postural orthostatic tachycardia syndrome)
Pain muzvibatanidza, pasina ruvara kana kuvhara
Huro inorwadza
Musoro wemusoro , iyo yakanga iri itsva pakurwara
Tender lymph nodes
Kuora mwoyo kusingaperi
Nerve manzwiro akadai sokushaya simba, kurira kana kupisa (kunonzi paresthesia )

Vanhu vane CFS vanowanzove nemamiriro ezvinhu akabatanidzwa zvakare. Izvi dzimwe nguva zvinogona kuvhiringidzika nezviratidzo, asi zvinogona kudiwa kuti zviongororwe uye zvibatwe zvakasiyana. Mamiriro ezvinhu anowanzobatanidzwa anosanganisira:

Kuora mwoyo
Irritable bowel syndrome
Fibromyalgia
Zvokudya, kemikemikari kana zvisikwa zvekuchengetedza zvisikwa

Uyewo Ona:

4 -

Inowirirana Sei Nevana Vechidiki Kupera Kunetseka Syndrome?

JCFS inonzi inofadza. Maererano neCDC, urwere hunopinda pakati pe2% uye 0.6% yemakore gumi nemaviri nemashanu. ICDC inotaurawo kuti CFS haina kufanana nevechiri kuyaruka kupfuura yevakuru, uye inowanzoonekwa nevana kupfuura yevaya vanoyaruka.

Imwe tsvakurudzo inoratidza kuti JCFS inowanzova muvana vevabereki vane vakuru veCFS kana zvimwe zvirwere zvakafanana, vachiratidza kuti zvinogona kuitika mumararamiro.

Uyewo Ona:

Ndiani Anowana CFS?

5 -

Kucherechedza Vana Vachiri Kupera Kuneta Syndrome

Panguva ino, hatina maitiro chaiwo ekujekesa kweJCFS, saka vanachiremba vanotenderera pamitemo yevakuru veCFS. Zvinogona kuva zvakaoma kuwana chiremba anonzwisisa CFS, saka iwe unogona kuongorora kuongorora vanachiremba vevana, vanachiremba vemhuri, uye vamwe munharaunda yako kuti vawane yakakodzera.

Kuti aongorore CFS, chiremba kazhinji anonyatsoongorora uye anoita zviyero zvezvirwere zvakawanda zvinogona kuita zviratidzo zvakafanana. Nokuti hapana kuongororwa kweCFS, inonzi "kuongororwa kwekuregererwa."

Zviratidzo zvekuongorora zvinosanganisira:

Kusatsanangurwa kusingaperi kuneta, kwete nekuda kwekushingaira, izvo hazvina kusimbiswa nekuzorora
Zvimwe kana zvimwe zvezviratidzo zvikuru, zvakadai sehupombwe, post-exertional malaise, dzisingabatsiri kurara uye dzetete lymph nodes
Kuneta uye zvimwe zviratidzo zvinenge zviripo kwemwedzi mitanhatu

Uyewo Ona:

Kuwana CFS Chiremba

6 -

Mishonga yeJuble Chronic Chronic Fatigue Syndrome

Hakuchina mushonga wehupi hupi hweCFS. Pane kudaro, tinofanira kutarisira zviratidzo. Kubudirira kutungamira kunogona kutungamirira kune huwandu huri nani mukushanda uye hupenyu hwehupenyu.

Zvakare, hatina tsvakurudzo yakawanda kuJCFS, saka tinofanira kuvimba nevakuru vechiCFS tsvakurudzo.

Hapana kana kurapwa kumwe kunoratidzwa kunatsiridza zviratidzo zvose zveCFS. Vanhu vakawanda vanoda kuwana huro hwavo humwe hwehutano uye mazano ekutungamirira. Izvi zvinogona kutora nguva yakawanda uye kuedza, izvo zvinogona kusanganisira zvipingamupinyi zvakawanda. Kunyange zvazvo chirongwa ichi chiri nguva refu uye chinogumbura, zvakakosha nokuda kwekuvandudza kunogona kupa.

Mutemo wekurapa unogona kusanganisira:

Mishonga yekudzivirira zviratidzo
Nutritional supplement
Zvokudya zvinoshanduka
Kubatirana, kuenzanisa zvine mwero , kurapa muviri, kana kupindwa kwemaitiro ekurovedza muviri
Psychological counseling or cognitive behavioral therapy
Mishonga yakaita sokunwadza muviri / muviri kana kuvhara muviri kuti udzivise marwadzo

Muna 2012, tsvakurudzo yakaratidza kuti chirwere checlonidine chakaonekwa chakachengetedzeka zvakakwana kutanga kutariswa miedzo sekugona kurapwa kweJCFS.

7 -

Ndezvipi zvinoratidzira?

Uchapupu hunoratidza kuti hafu kana vazhinji vevechiri kuyaruka vane JCFS vanogona kupora zvachose kubva kurwere mukati memakore mashoma. Mune chimwe chidzidzo chekutsvaga, avo vasina kupora vakanga vachiri kunetseka uye kusakundikana.

Kunyanya kuongororwa uye kurapwa kunofananidzwa sechinhu chikuru pakugadzirisa kukuru kwezviratidzo. Kana iwe uchifungidzira kuti mwana wako ane JCFS, zvakakosha kutsvaga kurapwa nokukurumidza.

8 -

Dambudziko Rinokosha reVaduku Vanopera Dambudziko Rokuneta Syndrome

Kurwara kusingaperi kwemhando ipi neipi kunogona kuchinja zvikuru kuzviremekedza. Izvi zvingave zvinonyanya kuitika apo chirwere chinopesana nebasa kusvika pakuyera kwakaita JCFS.

Vana neJCFS vanogona kunzwa "vakasiyana" kubva kune shamwari neshamwari dzekirasi. Vanogonawo kunzwa vakasununguka nokuti havagoni kupinda mumabasa akaita sevamwe vana. Zvakajairika kuti vazvigadzirire kuti varambe vachidaro, izvo zvinoita kuti zvirwere zvavo zvive zvakanyanya mberi.

Vechidiki vane JCFS vanonyanya kupotsa chikoro chakawanda - zvakanyanya se 33%, maererano nekutsvaga kwekunyorwa kwakataurwa pamusoro apa. Izvozvo zvinogona kutungamirira kune zvakawanda zvinowedzera kushungurudzika, uye kutsvakurudza kunoratidza kuti boka iri rinogona kunge rakanyanya kuve rakakwana uye kuti rive rakatsoropodza ivo pachavo. Izvi zvinowanzobatanidzwa nekuora mwoyo, maererano nekudzidza kwe2011.

Chirongwa che2012 chakaratidza kuti vechidiki vane chirwere ichi vaiva nehuwandu hwekuzvidya mwoyo pamusoro pezvinhu zvakawanda zvaive zvichienderana nehosha yavo. Vatsvakurudzi vakaona zvinyorwa zvishanu zvikuru:

Kurasikirwa kwevanhu uye kugadzirisa
Kusatenda uye kusagadziriswa
Manzwiro ekutambura
Kuva akasiyana
Kuita michero kuti vadzoke

Vana vari mukudzidza vakanyanya kunetseka nekukakavara pamusoro pekuti kana CFS iri "yechokwadi," kusakwanisa kutsanangura chirwere chavo, kuvhiringidzwa, kusatenda pamusoro pokurwara, uye kuvimba nevanhu vakuru muupenyu hwavo. Mhuri, vanachiremba uye zvikoro vanofanira kuziva nezvezvinetso izvi uye kubatsira kubasa kugadziriswa.

Mhuri yevana ava inogona kunzwa yakakosha. Kurapa kunogona kukonzera kuoma kwemari, uye nguva, simba uye kushushikana kunobatanidzwa pakuchengeta mwana anorwara zvinogona kukanganisa nhengo yemhuri imwechete uye sehukama hwemhuri.

Zvinetso izvi zvinogona kuwedzerwa nokusatenda mukurwara. Dzimwe nguva, vabereki, vadzidzisi, shamwari uye kunyange vashandi vezvoutano vangave vasingatendi kuti JCFS ndeyechokwadi, kana kuti mwana wacho anazvo.

Nokuda kwezvinetso zvedzidzidzo, unogona kufunga nezvekudzidzisa, makirasi eIndaneti, kana dzimba dzekudzidza. Nokuda kwezvinetso zvepfungwa, zvingave zvinobatsira kumhuri yose kuva nekutaura kwepfungwa.

Uyewo Ona:

_Sources:

_{Brace MJ, et al.} _{Zvinyorwa zvekuvandudza uye maitiro ekurapa vana.} _{2000 Oct; 21 (5): 332-9.} _{Mhuri kusimbiswa kwehutano hwekurwara: kuenzanisa kwevechiri kuyaruka vane chirwere chisingaperi chine simba, chirwere chemwana arthritis, uye utano hwakanaka.}

_{Carter BD, et al.} _Pediatrics. _{1999 May; 103 (5 Pt 1): 975-9.} _{Mafungiro epfungwa anowedzera kusuwa uye vana vechirwere rheumatoid arthritis.}

_{Nzvimbo dzeDaase Control uye Kudzivirira.} _{Dambudziko Rinopera Simba (CFS): Ndiani Ari pangozi?} _{Yakasvika muna November 2012.}

_{Fagermoen E, et al.} _{BMC tsvakurudzo dzinoongorora.} _{2012 Aug 7; 5: 418.} _{doi: 10.1186 / 1756-0500-5-418.} _{Clonidine mukurapwa kwevechiri kuyaruka kusingaperi kuneta kwechirwere: chirwere chekutsvaga chechirongwa cheNorCAPITAL.}

_{Fisher H, Crawley E. Clinical mwana wepfungwa uye zvepfungwa.} _{2012 Oct 23. [Epub mberi of print] Nei vaduku vane CFS / ME vanonzwa vachizvidya mwoyo?} _{A qualitative study.}

_{Fuchs CE, et al.} _{Clinical child psychology and psychiatry.} _{2012 Gumiguru 11. Utano nehuzivi: Kuzviisa muhutano hwechirwere chisinganzwisisiki kuora mwoyo syndrome uye vana vechidiki idiopathic arthritis.}

_{Garralda ME, Rangel L. Journal of child psychology and psychiatry, uye zvinyorwa zvese.} _{2004 Mar; 45 (3): 543-52.} _{Kuora mwoyo uye kubata nevana nevechiri kuyaruka vane chirwere chisingaperi chine simba yekutambudzika: a comparitieve kudzidza nedzimwe dambudziko revana.}

_{Grey D, et al.} _{Zvinyorwa zvekuvandudza uye maitiro ekurapa vana.} _{2001 Aug; 22 (4): 234-42.} _{Kufananidza kwemunhu mumwechete uye mhuri yepfungwa yeaolescents ane chirwere chisingaperi chinopera simba, rheumatoid arthritis, nezvinetso zvepfungwa.}

_{Huang Y, et al.} _{Nhoroondo dzechipatara uye mushonga wechidiki.} _{2010 Sep; 164 (9): 803-9.} _{Kushushikana kwepasitosheni muvechiri kuyaruka nekuita basa.}

_{Luyten P, et al.} _Psychiatry. _{2011 Zuva; 74 (1): 21-30.} _{Kuzvitsoropodza, kukonzera kushushikana, uye kushungurudzika mupfungwa kune varwere vane chirwere chisingaperi chine utano hwehutano: ukama nekuoma kwekuora mwoyo.}

_{Missen A, et al.} _{Mwana: kutarisira, hutano uye kubudirira.} _{2012 Jul; 38 (4): 505-12.} _{doi: 10.1111 / j.1365-2214.2011.01298.x.} _{Nzira dzezvemari uye dzepfungwa dzinoita kuti vanaamai vane vana vane chirwere chisingagone kurwara (CFS / ME)}

_{Nijhof FL, et al.} _Pediatrics. _{2011 May; 127 (5): e1169-75.} _{Mwana wechidiki anorwara kuneta muviri: kuwandisa, kuitika, uye kuparara.}

_{Rangel L, et al.} _{Zvinyorwa zveAmerican academy yemwana uye wechidiki chepfungwa dzepfungwa.} _{2005 Feb; 44 (2): 150-8.} _{Utano hwemhuri uye maitiro muhutano husingaperi hwehutano syndrome, juvenile rheumatoid arthritis, uye kushungurudzika mupfungwa kwehuduku.}

_{Sulheim D, et al.} _{Biopsychosocial medicine.} _{2012 Mar 21; 6: 10.} _{doi: 10.1186 / 1751-0759-6-10.} _{Mwana ari kuyaruka anorwara kuneta muviri;} _{tsvakurudzo yekutsvaga inoratidzira kuwirirana kwepakati pekuparara kwezvisizvo uye zviratidzo zvekurapa.}

_{van Geelen SM, et al.} _{Nhoroondo dzechipatara uye mushonga wechidiki.} _{2010 Sep; 164 (9): 810-4.} _{Mwana ari kuyaruka anorwara kuneta muviri: chidzidzo chekutevera.}

Related Content

Fresh articles

Intresting articles