Inenge 16 muzana yevaya vane Down syndrome vanewo celiac.
Vanhu vane Down syndrome, avo vanowanzoita zvirwere zvekuberekwa, vanotanga kukura chirwere chechiliac pane zvikwereti kupfuura kune avo vari vanhu vakawanda. Kutaura zvazviri, chirwere chechiliac chinogona kukanganisa vazhinji vanenge 16 muvanhu vese 100 vane Down syndrome.
Sei izvi zvichiitika? Zvinosuruvarisa, vanachiremba havana chokwadi. Asi hukama hwakasimba pakati pemamiriro maviri aya ndechimwe chinhu icho vabereki nevatarisi vevanhu vane Down syndrome vanoda kunzwisisa, kuitira kuti vangave vakatarisa zviratidzo zvechirwere chechiliac uye vawane kuongeka kwakakodzera kunoitwa , kana zvichifanira.
Down Syndrome Dambudziko uye Matambudziko Ehutano
Down syndrome inobva kuchinetso nemajene ako. Munhu wese ane 23 mapaundi emajini (iwe unowana hafu imwe yeviri imwe kubva kuna amai vako nehafu hafu kubva kuna baba vako), asi vanhu vane Down syndrome vane mamwe mazita ekuberekorora mune mamwe mazita ejeni: wechipiri wechipiri. Izvi zvinotungamirira kune izvo zvinonzi geneticists zvinonzi "trisomy 21," zita rekugadzira reArt syndrome.
Izvozvo zvinowedzera mazamu anogona kubva kubva paii vako kana amai vako, uye njodzi yeA Down syndrome inomuka nemakore emumai (uye zvichida baba, kunyange zvazvo havasi vatsvakurudzi vose vanotora maonero aya). Inenge imwechete pavana vana mazana manomwe vanoberekerwa muUnited States gore negore-vanenge vanenge 6 000 vacheche-vane Down syndrome.
Vanhu vane Down syndrome vane maonero akasiyana-siyana , kusanganisira maarmond akafanana nemeso, maziso mashoma nemuromo, uye musoro muduku uyo unowanzove wakanyarara kumashure.
Vanokwanisawo kuva neutsi hwekutaura kwemaviri, uye vanowanzotarisana nenyaya dzeutano kubva pane zvakaratidzwa uye kurasikirwa kwekunzwa kwekukanganisa kwemwoyo. Vose vana nevakuru vane Down syndrome vane rumwe rudzi rwekuremara kwepfungwa, kunyange zvazvo uwandu hweizvi hunogona kusiyanisa zvikuru kubva kumunhu kumunhu.
Zvinetso nemaitiro ezvokudya zvinowanzoonekwa kune avo vane Down syndrome.
Vacheche vanoberekwa neArt syndrome vangave vasina ruzivo rwakakwana (iyo inogona kugadziriswa nekuvhiyiwa mushure mekuberekwa). Inenge 5 muzana kusvika 15 kubva muzana yevaya vane Down syndrome vanogona kunge vane chirwere chinonzi Hirschsprung chirwere, chinoitika apo hutumbu hukuru hahushandi zvakanaka. Izvi zvingadawo kuvhiyiwa kubvisa chikamu chemukati wemukumbo usingashandi.
Chirwere cheCeliac: Chimwe Chimiro cheGenetic
Kufanana neArt syndrome, chirwere chechiliac chimiro chechimiro -kutaura, iwe unofanirwa kuva nehana imwechete "chirwere cheliacac" kuti uwedzere mamiriro acho. Zvisinei, kune zvimwewo zvinhu zvinosanganiswa, zvimwe zvacho izvo vatsvakurudzi vasati vataura. Haasi munhu wose ane avo vanonzi "chirwere cheliacac genes" inovhuvhuta nechirwere ichi.
Chirwere cheCeliac chinongovawo mamiriro ezvinhu , izvo zvinoreva kuti zvinosanganisira kurwisa kwechikamu chemuviri wako nemaune immune system yako. Paunenge uine celiac, kudya zvinogadzirwa nemumwe wezvitatu zvinonzi gluten -wheat, bhari, kana rye-zvinokonzera kuti muviri wako uzvidzivirire uye uparadze utumbo hwako muduku. Izvi zvinoderedza kukwanisa kwako kubata zvibereko zvinokosha kubva pakudya. Mune chimiro chayo chakaipisisa, chirwere chechiliac chinogona kukonzera kukanganisa kwakakomba, kuperevedza muviri, uye kuwedzerwa ngozi ye lymphoma.
Vanhu vane Down syndrome vane njodzi yakakura kwazvo yezvirwere zvekudzivirira kwegavo, uye vatsvakurudzi vanotenda kuti kusvika 16 kubva muzana yevanhu vane Down syndrome vanewo chirwere checliac. Izvo zvakakwirira kwazvo kupfuura inenge 1 muzana yehuwandu muhuwandu hwevanhu. Nyanzvi dzinokurudzira vabereki kuti vave nevana vane Down syndrome vakarongerwa chirwere chechiliac nedambudziko iri reyeriac pakati pemakore maviri neatatu.
Vaya vana vanoona zvakanaka vacharamba vachiita nzira inonzi inozivikanwa se endoscopy kuitira kuti vanachiremba vatarise zvakananga uye vatore sampuli dzomukati yavo. Izvi zvingaita sechinhu chikuru, asi chinhu chinokosha pakuwana chirwere chakakwana chechiliac chirwere chekuongorora .
Uyezve, vabereki vakawanda vane vana vakave nechinoshandiswa chekupedzisira kwegore rinotaura kuti mwana wavo akafamba nechikepe pasina zvipingamupinyi, uye kuti zvakanyanya kuvhiringidza kuvabereki kupfuura zvaiva kuvana.
Kuongorora zvirwere zveCeliac Beyond Toddlerhood
Kunyangwe kana Down syndrome mwana wako achiona zvisina kunaka nekuda kwechirwere chechiliac semwana muduku, haufaniri kurega kurinda kwako. Kunyange vanhu vakwegura vave vachangobva kuongororwa vane celiac , uye zvinogona kukudziridza chiitiko chero nguva. Haisi kungova mumamiriro ezvinhu ehuduku.
Zviratidzo zvinonyanya kuzivikanwa zvechirwere chechiliac zvinosanganisira mvura yeropa, kuneta, kuora muviri, uye kuperevedza ropa . Zvisinei, vanhu vazhinji havana "zviratidzo" zvekare, uye pane zvinoratidza zviratidzo zvinogona kusanganisira kuvhiringidzika , kurwadziwa pamwe chete , uye kunyange kutapudzwa kwemvere . Vana vane chirwere chisina kukwana vanogona kukura zvishoma nezvishoma kupfuura vezera ravo uye vangazopedzisira vava shoma sevakuru.
Matambudziko akadai sekufungisisa-kukanganisa kusagadzikana kwehutano uye kuora mwoyo kunogonawo kuwanzoonekwa kune vanhu vane chirwere ichi, uye izvi zvose zvinogona kuitika kuvanhu vanewo Down syndrome, zvakare.
Chimwe chidzidzo, chakatungamirirwa navanachiremba kuBoston Children's Hospital, chakawana kuti Down syndrome inyanzvi makiriniki haawanzoongorora zviratidzo zvechirwere chechiliac, kunyanya apo zviratidzo izvozvo hazvisi "zviratidzo zvekare" zvinowanzobatanidzwa nemamiriro acho ezvinhu. Icho chidzidzo chaitaura kuvhiringidzika uye matambudziko sekuzvibata sezviratidzo zvinowanzotaurwa nevanotarisira vana avo vakazoongororwa chirwere chechiliac.
Zvinokwanisika kuva nechirwere chechiliac pasina zviratidzo zvinonzwisisika zvachose , asi mairi maviri mamwe mapoka evatsvakurudzi akawana kuti vanhu vane Down syndrome vanoita zvirwere zveecliac zvinowanzoita kupfuura kuti vasave nezviratidzo zvakajeka, kunyanya kukura kukura. Ichokwadi, chimwe chidzidzo chakawana kuti Down syndrome vana vakange vachangobva kuongororwa vane chirwere chechiliac vaikwanisa kunyanya kuva pasi pe 10 percentile yekukwirira nekurema.
Zvisinei, imwe chidzidzo chinoratidza kuti zviratidzo zvechiriyumu-chirwere chemahara, chirwere, uye kuzvirambidza-zvinoitika kakawanda mu Down syndrome vana vasina celiac. Zvinogonawo kune avo vane chirwere chechiliac kuti vave nehutachiona hwehutano, iyo inogonawo kuitika musipo kwechirwere chechiliac mune avo vane Down syndrome. Nokudaro, vatsvakurudzi vakati, vanochengeta uye vanoriniki vanofanira kuve vakangwarira uye vhidhiyo yemamiriro acho ezvinhu.
Kune mamwe mashoko akanaka: chidzidzo chikuru kubva kuSweden chakaratidza kuti vanhu vane Down Down syndrome uye chirwere cheliliac havakwanisi kuuraya rufu kupfuura vanhu vane Down syndrome voga.
Kuchengeta Munhu Ane Zvirwere Zvisingaiti
Zvinosuruvarisa, hapana ikozvino mishonga yemishonga yekurapa chirwere ichi. Izvozvo zvinogona kuchinja mune ramangwana, asi sekunozvino, kurapwa chete kwechirwere chechiliac ndiko kudya kweguten-kusina , iyo munhu ane chidiac inofanira kutevera hupenyu.
Zvokudya zvisina guten zvinonzwika zviri nyore pamapepa, asi zvinogona kuva zvakaoma pakuita nokuti zvikafu zvakawanda zvino zvine gluten mbeu. Apo uchibika mumwe munhu ane chirwere ichi, unoda kuverenga mabhuku zvakanyatsochenjerera uye uchenjere kurwisana ne-gluten-mukicheni.
Ichokwadi, dzimwe mhuri dzinoita tsika yekudya gluten-isina kumba kumba kuchengetedza hutano hwemutevedzeri ane chirwere chechiliac. Kudya zvakare kunogona kunge kwakaoma, kunyange zvazvo zvakave nyore nyore nekupararira kwemasumusi asina guten pamakambani ezvokudya zvakasiyana-siyana uye nekukurumidza zvekudya.
Shoko Rinobva
Apo mwana wako ane Down syndrome, kufungidzira kushanduka kukuru sekudya kusina-gluten kungaita sekunopisa, kunyanya kana mwana wako anewo mamwe matambudziko ehutano anowanzoonekwa kune avo vane Down syndrome. Kurera Down syndrome mwana kana kutarisira munhu mukuru kunogona kunge kwakaoma, uye kuwedzera mitemo yezvokudya zvakasiyana hazvizobatsiri.
Asi pane mashoko akanaka: hapana chikonzero chekudzivisa mwana wako nezvekiki, pizza, uye zvimwe zvehutano, sezvo mararamiro akanaka e-gluten asina zvekudya izvi ose aripo. Uyezve, kana wanyatsoziva (inobvumirwa kuti yakadzika) kudzidzira mazai anouya nekudya, iwe uchaona kuti ichava yechipiri, uye iwe ungaona zvimwe zvekudya kwemwana wako uye zvimwe zviratidzo zviri nani, zvakare.
> Sources:
> Ludvigsson JF et al. Dambudziko reCeliac uye Down Syndrome Kudzidza: Chidzidzo cheNyika Yose Cohort. BMC Pediatrics. 2017 Jan 31; 17 (1): 41.
> National Down Syndrome Society. Gastrointestinal Tract & Down Syndrome chokwadi pepa.
> Mårild K et al. Down Syndrome inosanganiswa neKuwedzereka Kwengozi yeCeliac Disease: Rudzi Rwenyaya Kuongorora-Kudzidza. Journal of Pediatrics. 2013 Jul; 163 (1): 237-42.
> Pavlovic M et al. Kuongorora kwezvirwere zveCeliac muDream Syndrome - Makwegura uye Matsva Dilemmas. World Journal of Clinical Cases. 2017 Jul 16; 5 (7): 264-269.
> Sharr C et al. Kucherechedza Dambudziko reCeliac muvarwere vane Down Syndrome. American Journal of Medical Genetics, Chikamu A. 2016 Dec; 170 (12): 3098-3105.