Kuisa mapapu kunogona kuonekwa se "ndisambo ini" kurapa kwerokuti cystic fibrosis. Asi pasinei nokuti uri kushingaira sei nemishonga yako, chokwadi chakaipa ndechekuti kuchauya zuva apo mapapu ako asingagoni kurwisa zvakare. Pakupedzisira, kukanganisa kubva muhondo yeupenyu hwose ne cystic fibrosis (CF) ichave yakakura zvikuru, uye mapapu ako anotanga kukanganisa.
Panguva ino, vatsigiri vako vehutano vanogona kukurudzira kuisa mapapu senzira yekurapa iyo inogona kuwedzera makore muupenyu hwako.
Iwe uchava kutarisana nechisarudzo chikuru chinoda kuzvipira kukuru. Iwe uchava nemibvunzo yakawanda. Tsvaga mhinduro kune vamwe vavo pano.
Apo Inguva Yokufunga Nekutsvaga
Vatsigiri vako vehutano vachakubatsira kuti uone kana nguva yacho yakakodzera iwe, asi kazhinji, kuchinja kunofungidzirwa kune vanhu vane chirwere chakakomba chemapapu neFVV pasi pe40%.
Kuda Kubika Kupora Cystic Fibrosis?
Kwete, kwete zvachose. Kazhinji kuchinja kune vanhu vane cystic fibrosis vari pamwe chete, zvichireva kuti mapapu maviri anotsiviwa. Iko mapapu akawedzerwa haazove nemajini ako, saka havazove neCFTR mutation inokonzera CF. Mapapu enyu matsva achakwanisa kutakura munyu nemvura zvakanaka, saka havazove nezvinetso nehutachiona hwemapukamu nemapapu ayo mapapu ako aive nawo.
Iwe uchave uine CFTR mutation mune mamwe maviri , zvakadai sepancreas uye sinus. Iwe uchazofanira kutora ma enzymes kuti akubatsire kudya zvokudya uye kudzivirira kusadya kwakakwana. Iwewo ucharamba uchitarisana nechivi uye zvimwe zvepamusoro zvirwere zvinoputika zvinogona kupararira uye kuvhara mapapu matsva ako.
Kutora Mishonga Mushure mekunyora
Mushure mokunge mave nekugadzirwa, iwe uchazotora mishonga kweupenyu hwako hwose, asi huchave hwakasiyana nemishonga kupfuura iwe wawakamboshandiswa. Panzvimbo pokutora mishonga kuti ikubatsire kufema, iwe uchange uchitora mishonga yakawanda kuti udzivirire mapapu matsva ako uye kudzivirira muviri wako kuti urege kuvaramba.
Nzira Yokuwana Nayo Muchengetedzo Wekutsvaga Mutauro
Pane imwe nguva chiremba wako asarudza kuti unoda kupemha mapapu, iwe uchaongororwa neboka rekuisa. Kana iwe ukasangana nemitemo, iwe uchaiswa panzvimbo yekurindira yenyika. Kana mupiro achizovapo, nhengo inopinda kune munhu wekutanga pane yakarongwa iyo yakakodzera.
Ndichafanira Kurindira Nguva Yakadini Kuti Ndisimbe?
Nguva yakareba iwe unenge wakamirira kuwedzerwa hazvibviri kufanotaura. Ichagadziriswa kuburikidza nekuwanika kweunopa uye nechinzvimbo chako pane urongwa. Pamapapupa emapapu, pane mavara akasiyana-siyana ekutarisira vanhu vakuru nevana, uye rimwe nerimwe rezera rine zvarinosarudza zvaro.
Vakuru: Kurindira runyoro rwevanhu vane makore gumi nemaviri nerekare kunotsanangurwa nechimwe chinhu chinonzi Lung Allocation Score (LAS). IAS system, iyo yakasikwa neUnited Network for Organ Sharing (UNOS) muna 2005, inotarisa kuoma kwehutano uye mukana wekurarama uye inopa nhamba yepambare pakati pe 0 ne100.
Vanhu vane zvikwiriso zvakakwirira vanoonekwa sevanotambira mberi uye vanoiswa kumusoro kwerongwa rwekumirira. ICHI zvikoro zvinoongororwa zvakare zvisati zvese mwedzi mitanhatu.
Vana vari pasi pe12: Kurindira mazita evana vanopfuura pasi gumi nemaviri vachiri pakutanga-kuuya, yekutanga-yakagadzirirwa hurongwa. Nzvimbo pane urongwa inotsanangurwa chete nehurefu hwenguva iri muurongwa.
Zviratidzo zvekupona pashure pekushandura
Maererano neshumo ra2008 kubva kuScientific Registry yeTransplant Receivers (SRTR), vanenge 80% yevamwe vapi vemapapiro vanogadzira mapapu vachiri kurarama gore rimwe mushure mokunge vatumirwa uye vanenge 50% vari kurarama mushure memakore mashanu.
Sources:
Cystic Fibrosis Foundation. Murwere Registry 2006 Annual Annual Report.2008.
Scientific Registry yeTyplant Receivers. "SRTR Analysis" Gunyana 2008.
United Network Network for Sharing Sharing. "LAS calculator". February 2009.