Kuchengetedza Zvinhu Zviri Kutarisisa
Cystic fibrosis chirwere chisina kuzivikanwa kurapwa. Zvinangwa zvekurapa ndeyokudzivirira zviratidzo, kunonoka kufambira mberi kwechirwere, kudzivirira matambudziko, nekudaro kuwedzera hupenyu hwehutano hweCF.
Team Approach
Dzidzo dzakaratidza kuti zvibereko zviri nani apo varwere ve cystic fibrosis vanowana kurapwa neboka revanonyatsodzidziswa vashandi kune rimwe re 115 rakagamuchirwa CF nzvimbo yose muUnited States.
Nhengo dzeCF team dzinowanzobatanidza:
- Vanachiremba
- Vanamukoti
- Nutritionists
- Vashandi veHurumende
- Physical Therapists
- Kufuridzirwa Nevana
- Psychologists
- Pharmacists
Mishonga
Vanhu vane cystic fibrosis vanofanira kutora mishonga kweupenyu hwavo hwose. Mimwe yemishonga inowanzo ndeyekuti:
Mishonga inorwisa mabhakitiriya: Kutorwa kana kudzivirira kana kuporesa utachiona. Dzimwe nguva mishonga inorwisa mabhakitiriya inotorwa nemuromo, uye dzimwe nguva iyo inenge yakasvibiswa uye inoputika uchishandiswa nemichina inonzi nebulizer.
Anti-inflammatory: An anti-inflammatory chirwere chinoderedza kutsamwa uye kuzvimba. Anti-inflammatory drugs zvinogona kurongerwa kune CF varwere kuti vaderedze kuputika mumapapu uye kufema mavara.
Steroidyumu nderimwe rudzi rwemishonga inorwisa-kupisa, asi haishandiswi kakawanda muCF kurapa zvakare nokuti inogona kukonzera chirwere cheshuga kana zvinetso neitsvo nemapfupa. Zvisiri-steroidal anti-inflammatory drugs (NSAIDs), zvakadai se ibuprofen, zvinowanzonyanya kurongerwa muCF kurapa.
Enzyme: Chimwe chezvinetso zvakakonzerwa neCF ndechokuti maitiro akaoma mukati mepancreas anozvidzivirira kubva pakusunungura ma enzymes muviri unoda kudya zvokudya. Kana chikafu chisina kudyiwa, muviri haugoni kuwana mitezo ipi zvayo. Vanhu vane CF vanofanira kutora mapiritsi ane enzyme dzinodiwa mushure mekudya kwega kwega.
Mucolytics: Mucolytics mishonga inobatsira kumucheka mutsvuku uye inoita kuti zvive nyore kukonzera kunze. Vanowanzomiririrwa kune varwere ve cystic fibrosis kuti vabatsire kujekesa mafambiro avo emvura yakasviba, yakasimba iyo CF inokonzera. Dzimwe nguva kugadzikana kunotorwa nemuromo uye dzimwe nguva vanoputika vachishandisa nebulizer.
Airway Clearance
Chikamu chinokosha cherasitic fibrosis kurapwa ndiko kushandiswa kwemhando dzakasiyana-siyana dzekubatsira kusunungura nekubvisa bundu. Cystic fibrosis varwere vanofanira kunge vane chirwere ichi kakawanda pazuva. Chirwere ichi chichabatanidza imwe kana akawanda emhando idzi:
Chep Physical Therapy (CPT): Kurapa uku kunoshandisa nzira inonzi percussion inosanganisira rhythmic tapping yemakumbo-panzvimbo dzakarongwa dzebhokisi. Nevachangobva kuongororwa vane chirwere cheCF, chirwere chekuporesa kana mukoti kazhinji anowanzoita CPT asi vabereki vachadzidziswa kuti vaite sei kuitira kuti vagone kurapa kurapa kumba. Chiitiko cheCPT chinotora nguva inenge maminitsi makumi matatu uye chinofanira kuitwa kusvikira kanomwe pazuva.
Kutsigira: Imwe nzira inowanzoitwa pamwe chete nehuwandu hwepakati paCCT inodedera. Izvi zvinoitwawo namaoko, asi sezvinoreva zita racho, kufamba kunokurumidza kunoshandiswa pane kungofambisa.
Mvura yakashambadzira: Pakati peCCT, murwere anoiswa munzvimbo dzaizobvumira kuti magetsi anobatsire kusunungurwa kwemhepo kunoputika mumapapu. Izvi zvinozivikanwa se-postural drainage.
Inflatable Therapy Vest: Dzimwe nguva, panzvimbo yebhuku reCPT, chipfeko chinonzi chivako uye chekuvhara ndege chinoshandiswa. Iyo jira rinoputika uye rinosvibisa nokukurumidza kuti isunungure ruzha kuburikidza nekunyorovedza kwekunyorera. Zvakakosha zvekushandisa svondo ndeyekuti murwere anogona kuita chirwere pasina rubatsiro, uye zvirongwa zvinopedza maminitsi makumi maviri chete.
Flutter Dhidhiyo: Iyo inozivikanwa sevheti ye flutter, chigadzirwa ichi chiduku chine maoko chinotaridzika chakafanana nechechi inhaler.
Murwere anoisa mutauri mumuromo wake uye anoporesa nesimba. Chigadzirwa chacho chinoshandisa mhepo yakaneta kuti iite kudengenyeka kwechifuva.
Kudya
Vanhu vane cystic fibrosis havanyanyi kudya zvakakwana zvokudya kubva pazvokudya zvavanodya, uye basa rokufema rinoita kuti vashandise mamwe makoriki. Iyi nyaya mbiri inokonzera kusakwana kwezvokudya uye kushaya kukura. Kuti varwise zvinetso zvekudya, CF varwere vanoda kusvika 50% kune mamwe makoriri kupfuura vamwe vanhu vezera ravo. Vanodya mishonga vanogadzira zvirongwa zvekudya zvakasiyana-siyana zvakanamatira kune zvinodikanwa nemurwere mumwe nomumwe, asi kazhinji, vanhu vane cystic fibrosis vanotarisira ku:
- Idya 3 kudya uye 2-3 zvinonwiwa pazuva
- Idya zvokudya zvakanyanya muprotheni nemafuta
- Imwai chikafu chinokwidza kamwe kana kaviri pazuva
- Tora mavitamini ekuwedzera, kunyanya mavitamini A, D, E, uye K, izvo zvisina kuchengetwa zvakanaka kuvanhu vane CF.
Dzidzira
Chiito chepanyama chinobatsira kwenguva pfupi uye kwenguva refu kwevanhu vane cystic fibrosis. Iyo inobatsira ikozvino ndeyokuti kurovedza kunomanikidzira mhepo yakawanda kuburikidza nemapapu uye kunobatsira kusunungura kukomba. Kubatsira kwenguva refu kwekurovedza muviri ndeyokuti inobatsira kuvandudza hutano hwepfungwa uye kutsungirira, izvo zvinoita kuti muviri uwedzere simba kurwisana nemigumisiro yeCF.
Lung Transplantation
Apo cystic fibrosis inopfuurira uye inokonzera kukanganisa kwakakomba kwemapapu, kuiswa kwemapapu kunogona kuva nzira yekurapa kune vanhu vanoita zvinoenderana. Kunyange zvazvo kushandiswa kwemapapu hakusi kusarudzwa kwevanhu vose, zvakaratidza kuti zvakabudirira chaizvo kune vamwe varwere veCF. Vanhu vanopfuura 1600 vane cystic fibrosis vakagamuchira kuputika kwemapapu, uye inenge hafu yavo yakapona kwemakore anenge mashanu mushure mokunge vagamuchira mapapu matsva.
Sources:
Bilton, D. (2008). Cystic fibrosis. Medicine. 36, 273 - 278.
Pitts, J., Flack, J., & Goodfellow, J. (2008). Kuvandudza kudya kunovaka muviri mumushandi we cystic fibrosis. Zvinyorwa zveMishonga yehutano. 22, 137-140.