Multiple sclerosis (MS) chirwere chinokonzerwa neurological chinokanganisa uropi nemutsipa wepelinha, zvichikonzera zviratidzo zvakadai sokuneta zvakakomba, kunzwa kunorwadza, kupera simba, kuora mwoyo, uye marwadzo uye chirwere chemuviri. Zvinosuruvarisa, pasinei nekutsvakurudza kwakakwana, nyanzvi haisati dzawana zvakananga "nei" shure kwe MS-uye izvi zvinokanganisa zvakakonzera chikonzero chacho zvakaita kuti zvive nyore kuwana mushonga.
Izvozvo zvakati, nhau dzakanaka ndeyokuti kuburikidza nokutsvakurudza kwakasimba, kuziva, uye dzidzo, vanhu vazhinji vari kurarama zvakanaka neMS uye chirwere chezvirwere chavo chave chichimbomira nekubuda kwezvimwe zvirwere zvitsva -zvinoshandiswa kurapwa . Asi, pasinei nekufambira mberi kunoshamisa, basa rakawanda rinofanira kuitwa. Pano ndiyo inotungamirira masangano anoramba akazvipira pakusika hupenyu hwakanaka kune avo vane MS uye pakupedzisira kuwana mushonga wechirwere ichi chinokanganisa uye chisingazivikanwi.
National Multiple Sclerosis Society
I National MS Society (NMSS) yakatangwa muna 1946 uye inogara muNew York City, kunyange ine zvitsauko zvakapararira munyika yose. Chinangwa chayo ndechokugumisa MS. Asi, panguva ino, sangano iri rakakurumbira risina purogiramu rinotarisira kubatsira vanhu kurarama zvakanaka nechirwere kuburikidza nekubhadharisa ruzivo, kupa ruzivo rwehutori-dzidzo, kukurudzira ruzivo, uye kusika mharaunda uye mapurogiramu anobvumira vanhu vane MS nevanodiwa vavo kushamwaridzana nekuvandudza mararamiro avo ehupenyu.
Batanidzwa
Chinangwa chikuru cheNMSS ndechekusimudzira kubatana pakati pevanhu vane MS uye vemhuri dzavo, shamwari, uye vashandi-nzira yekutsvaga yekuwana mushonga, kutaura. Kune zviitiko zvakawanda zvakabhadharwa neNMSS munyika yose iyo iwe nevanoda iwe vanogona kubatanidzwa nayo, sekutora muT Walk MS kana Bike MS chiitiko kana nekuva MS Activist.
Resources
Tsvakurudzo uye mapurogiramu ezvekudzidzisa zvinhu zviviri zvakakura zveNMSS. Zvechokwadi, sangano rakasimudza mari inodarika $ 974 mamiriyoni mukutsvakurudza kusvika iye zvino uye inonyatsopindira mukutsigira tsvakurudzo iyo haisi kungonakidza chete, asi iyo inoshandura chiso che MS kuti zvive nani.
Mamwe mapurogiramu ekutsvakurudza anofadza anotsigirwa neNMSS anosanganisira kuongorora mune basa rekudya uye chikafu muSMS, stem cell therapy, uye kuti myelin sheath inogona kugadziriswa sei kudzorera nerve basa. Mukuwedzera kune mapurogiramu ekutsvakurudza, zvimwe zvipo zvinokosha zvinopiwa neNMSS zvinosanganisira munharaunda yemutsigiri weInternet uye MS Connection Blog.
Multiple Sclerosis Association of America
The Multiple Sclerosis Association of America (MSAA) isangano rehurumende risingabatsiri rakatangwa muna 1970. Chinangwa chikuru ndechekupa mazano uye kutsigirwa kwevanhu veMMS.
Batanidzwa
Imwe nzira yekubatanidza neMSAA ndeyekuti uve "nhengo yemugwagwa musangano," zvinoreva kuti iwe unoparadzira shoko pamusoro Sokushambira kwaMS fundraiser uye kukurudzira nezve MS. Izvi zvinogona kuitwa zvese (kuburikidza nemagariro evanhu) kana nokutaura nemabhizimisi emunharaunda nemasangano.
Resources
Nzvimbo yepaIndaneti yeMSAA inoshandiswa-ishamwari uye inopa zvinhu zvakawanda zvekudzidzisa. Imwe inofambisa inyanzvi ndeyekuchinja kwavo hupenyu Mzuva rekuti S vashandise mavhidhiyo anoratidza kuti MSAA inobatsira sei avo vanorarama neMS (somuenzaniso, kupa chigadziro chinotonhorera mukadzi ane MS inopisa nokupisa).
Uyewo, chinyorwa chinobatsira ndeyekushanda kwangu kweMespiritual MS yangu, iyo isingabhadhari kune vanhu vane MS uye avo vanobatana navo. Iyi inyanzvi inobvumira vanhu kuti vatevedze basa ravo rezvirwere zveMMS, ruzivo rwehutano rekuchengetedza, kuumba mibairo pamusoro pezviratidzo zvezuva nezuva, uye kunyange zvakachengeteka kuungana kuboka ravo rekutarisira.
Kukurumidza Kurapa Project ye Multiple Sclerosis
Sezvo sangano rinotsungirira-risingabatsiri, sarudzo yeArgented Cure Project yeMS (ACP) ndeyokukurumidza kuendesa kutsvakurudza kuedza kuwana mushonga.
Batanidzwa
Kunze kwezvipo, kune dzimwe nzira shomanana dzekubatanidzwa neboka iri kusanganisira:
- Kushandisa Mariya J. Szczepanski "Usamborega" MS Scholarship
- Kutanga tsamba yekunyora tsamba
- Kubata ACP fundraiser
Resources
Zvinofadza kuti ACP ine chekuunganidza zvakakura (kupfuura zvuru zvitatu) samples neropa kubva kune vanhu vanogara neMS uye dzimwe zvirwere zvinoderedza. Vatsvakurudzi vanogona kushandisa deta iyi uye vozodzosera mhinduro kune ACP kubva padzidzo dzavo pachavo. Chinangwa chekuchengetedzwa kwemashoko aya kune zvakanyanya uye nekukurumidza kuwana mushonga kune MS.
Uyewo, pane ACP zvigaro zvinokurudzira kushandira pamwe nekuuya-pamwe-kune vamwe mukati memusangano we MS, kusanganisira MS Discovery Forum uye MS Minority Research Network.
MS Focus: The Multiple Sclerosis Foundation
The Multiple Sclerosis Foundation (MSF) yakatangwa muna 1986. Chikwata chekutanga chesangano risina purofiti ndechekupa dzidzo kuvanhu vane MS mukuvandudza hupenyu hwavo. Nokufamba kwenguva, MSF yakatangawo kupa masangano kune vanhu vane MS uye vadikanwa vavo, kunze kwekugovera zvidzidzo zvemhando dzakanaka.
Batanidzwa
Imwe nzira inonakidza yekubatanidzwa ne MS Focus (kana iwe une MS) ndeyekufunga kuva MS Focus Ambassador. Muchirongwa ichi, mamishinari anomutsa ruzivo pamusoro peMMS mukati memharaunda yavo, kuronga uye kutungamirira vatengesi vemari, uye kubatsira kubatanidza avo vane MS nemapoka avo ekuchengetedza nemasangano anopiwa neMS Focus. Vanhu vanofarira purogiramu ino vanofanira kutanga vashandise uye, kana vakagamuchirwa, vachawana kurairirwa kwakanyanya kuti vavadzidzise pamusoro pebasa ravo.
Imwe nzira yekubatanidzwa (kana iwe une MS kana kuti kwete) ndekukumbira chikwata chokuziva kubva MS Focus panguva yeNational MS Education uye Mwedzi Wokuzivisa muna March. Iyi kitanda yakasunungurwa inotumirwa kumba kwako uye ine zvidzidzo zvekudzidzisa kubatsira kubvisa ruzivo pamusoro peMMS mukati memunharaunda yako.
Resources
IW MSF inopa dzidzo zhinji dzekudzidzisa, kusanganisira MS Focus magazini, mapurogiramu emanzwiro, uye in-person workshops. Inobatsirawo avo vane MS vanorarama zvakanaka nechirwere ichi nekupa mapoka ekutsigira uye pamwe nemari dzichibhadharwa zvidzidzo zvidzidzo sega yoga, tai chi, kuchena kwemvura, kutasva mabhiza, uye mapuraneti e bowling.
Uyezve, Chiremba Health Network ishamwari ye Multiple Sclerosis Foundation. Iyi yehutano ihurukuro yepaIndaneti isina ruzha inobvumira vanhu vane MS kuti vatsvake hutano uye nyanzvi dzehutano munzvimbo yavo.
Unogona Kuita MS
Unogona Kuita MS, zvakafanana neJimmie Heuga Center ye Multiple Sclerosis, isangano rehurumende risina purogiramu rinopa simba kuvanhu vane MS kuti vazvione ivo uye hupenyu hwavo kupfuura hutachiona hwavo. Iyi nheyo yakasikwa muna 1984 neOlympic skier Jimmie Heuga, uyo akaonekwa kuti ane MS pazera remakore makumi maviri nemaviri. "Munhu-wose" wehutano hwehutano, hunosanganisira kugadzirisa kwete utano hwepanyama bedzi asiwo hutano hwepfungwa uye hupenyu hwakanaka, iri basa guru re Can Can MS.
Batanidzwa
Nzira huru dzekubatanidza neCan Do MS ndeyekugadzirisa iwe pachako chiitiko chekugadzirisa mari, kukurudzira hurongwa hwedzidziso hwehutano hunoisa pakushanda muviri, chikafu, uye kuronga zviratidzo, kana kupa kune nheyo zvakananga kana Jimmy Huega Scholarship fund.
Resources
Unogona Kuita MS inopa webinars pamisoro yakasiyana-siyana yeSMS, semashoko ekuremara, matambudziko einishuwarenzi, zvinetso zvekuchengetedza, uye kurarama ne MS kurwadziwa uye kuora mwoyo. Inopawo mapurogiramu akasiyana-siyana emapurogiramu ezvidzidzo, sekuita kwemazuva maviri TAKE CHARGE chirongwa umo vanhu vane MS vanobatana nevamwe, vatsigiri vavo vanobatsirana, uye vashandi vezvenyanzvi dzeSMS pavanenge vachigovana zvavanosangana nazvo uye vachidzidza pamusoro pemararamiro akanaka emararamiro.
Rocky Mountain MS Center
Dhiyabhorosi Mountain MS Center inotungamira kukurudzira kuzivikanwa kweSMS uye kupa hutano hwakasiyana kune avo vanorarama nemamiriro ezvinhu. Iyi nheyo inowanikwa paYunivhesiti yeColorado, iyo ndeimwe yemapurogiramu makuru ekutsvaga kweMM munyika.
Batanidzwa
Kana iwe uchigara kunze kweColorado, unogona kuva mudiwa wekare, apo iwe unoita mwedzi mumwe nomumwe kuchengeta kutsigira. Kana iwe unogona kufunga kupa mari yako yekare kuMotokari yeRugare.
Kana iwe uchigara muColorado, unogona kugadzira boka rako rekufamba-famba uye unobatanidzwa ne Multiple Summits for MS, enda kune gala wegore rose, kana kuva nhengo ye Young Young Network Network.
Resources
Gomo reDedy MS Centre rinopa zvinhu zvakawanda zvekudzidzisa, kwete chete kune avo vane MS, asi nemhuri dzavo uye vanochengetawo. Zvinhu zviviri zvinokosha zvinosanganisira:
- Infor MS: Magazini ehurukuro, yega roga inowanikwa mukudhindwa kana kudijita inopa zvitsva paSMS kutsvakurudza pamwe nehuwandu hwepfungwa dzepfungwa kune avo vanogara neMS
- eMS Nhau: Nyaya yepapaiti inopa mutsva-kusvika-yakagadziriswa meshandisirwo emasvomhu anoenderana ne-MS nemigumisiro
Dombo reMedha MS Centre rinopawo mishonga inobatanidza, sezvakaita hydrotherapy, Ai Chi (mvura-based Tai Chi), pamwe nekupa mazano, kuremara, makadhi eMSS, uye chirongwa chezuva guru rekuchengeta muchengeti.
Shoko Rinobva
MS inobata vanhu zvakasiyana-siyana, ichi chikonzero nei kurwisana nechirwere uye kutarisira zviratidzo zvayo kunogona kuva basa rakaoma. Mune mamwe mazwi, hapana vanhu vaviri vane zvakafanana MS.
Izvozvo zvakati, sezvo masangano eSM anoramba achirwira mushonga uye achipa mazano anobatsira vanhu kurarama zvakanaka nehosha yavo, zvakakosha kugara wakasimba mune rako rega MS rwendo.
> Sources:
> Birnbaum, MD George. (2013). Multiple Sclerosis: Muongorori weChitareji weKutsvaga uye Kurapa, Chipiri chepiri. New York, New York. Oxford University Press.
> Ziemssen T. Symptom Management muvarwere ne Multiple Sclerosis. J Neurol Sci . 2011 Dec; 311 Suppl 1: S48-52.