Kana iwe kana mudiwa wako achangobva kuongororwa ane MS yechipiri (SPMS), unogona kushamisika kuti nyanzvi yako yezveuroyoti yakasvika sei pakupedzisira.
Zvimwe, zvichida uri kudzorerazve-remitting MS (RRMS) uye unoshamisika kuti chiremba wako anoziva sei kana (kana kana) iwe uchachinja kubva kuRRMS kuenda kuPSMS.
Aya ndiwo mafungiro evanoita, uye semunhu anogara naWS , kunzwisisa chirwere cheSMS chirwere chakakosha.
Nenzira iyo iwe wakanyatsogadzirirwa kune ramangwana rako uye matambudziko aungatarisana nayo.
Kuongorora Kubudirira Kwechipiri Multiple Sclerosis
Multiple sclerosis (MS) chirwere chakakomba chepfungwa chinogona kuva chakaoma kuongorora. Kune imwe, zviratidzo zvinogona kufanana nezvimwe zvirwere zvehutano. Chechipiri, hapana chiyeuchidzo chimwechete chekusimbisa kuongororwa. Pane kudaro, kuongorora MS kwakafanana nekuisa pamwe puzzles, uye dzimwe nguva zvidimbu hazvikwanisi zvakakwana.
Kunyanya zvakanyanya, kuongororwa kweSMS kunosanganisira kuisa pamwe kusanganiswa kwehuchapupu hunopikisa (somuenzaniso, migumisiro inobva kuMRI kana kuvharwa kwechimbaridzo ), pamwe chete nemashoko akazvimirira, semunhu wenhoroondo yezviitiko zvepfungwa uye kuongorora kwepanyama.
Izvozvo zvakati, kana zvasvika pakutsvaga kwechipiri MS inofambira mberi, chiremba wako anofanira kutora matanho maviri anokosha:
Danho Rokutanga: Simbisa Zvakaitika RRMS
Kusimbisa nhoroondo yekudzokazve-yekuregererwa MS (nei inonzi "yechipiri") inogona kuva yakaoma, sezvinonzi vamwe vanhu vangawana chirongwa cheRRMS vasingazivi kunyange.
Zvichida vakanga vasingazivi kana kuti zviratidzo zvavo zvakanga zvisina kunyatsooneka, havana kumboona chiremba.
Nhanho yechipiri: Simbisai MS yako iri Progressive
Mushure mekusimbisa nhoroondo yeRRMS, chiremba wenyu anofanira kutsanangura chirwere chako chemazuva ano se "chinopfuurira mberi," kana kuti chinowedzera kuwedzera kupfuura nguva.
Kuti unzwisise zviri nani "kufambira mberi" zvinoreva, zviri nyore kutarisa zvose biology zveSMS uye kliniki yemifananidzo, zvinoreva kuti munhu ane SPMS chii.
Biology ye SPMS
MuRRMS, tinoziva kuti masimba evanhu anorwisa myelin sheath (iyo inodzivirira yakakomberedza nerve fibers), uye izvi zvinonzi kudonhedzwa. Sezvo myelin sheath iri kukuvara kana kuparadzwa, zviratidzo zvemitsipa hazvikwanise kutapurirwa zvakanaka kubva muuropi uye mutambo wesipfupa kune imwe yose yomuviri.
Izvi zvirwere zvemasimba zvinorwisa ma myelin sheath chirwere chokuputira, sezvinoratidzwa nemachena machena (anonzi gadolinium enhancing lesions ) anoonekwa pane kusiyana neMIsIs panguva yekuoma zvakare.
Zvisinei, muSMS, pane kuchinja kuduku kunokonzera mukati mehutano hwenheyo. Panzvimbo pezvo, inoratidzira zvikamu zveSMS zvinosvibiswa nemusoro wakachena nemuchena nyaya uye atrophy (kurasikirwa kwemasero emagetsi), sezvinoonekwa paMMIs europi uye musipinha.
Kutaura zvazviri, atrophy yemutsipa wepelinha inonyanya kukoshesa muSMS pane RRMS uye nedhigirii reatrophy correlates nemaitiro ekuremara mumuviri munhu. Nemutsiro wepelinha, vanhu vane SPMS vanogona kukurira matambudziko akawanda kufamba, pamwe nekushungurudzika kwebvudzi uye maronda.
Zvakakosha kunzwisisa kuti kuchiri kukanganiswa kunowanikwa muSMS, asi zvakanyanya kupararira, zvinopesana nekutarisa, sekuRRMS. Uyewo, nepo kuchine humwe huputi hunoenderera mberi hunoitika muSMS, haisi kungofanana neyoyo muRRMS.
Kakawanda, kupera kwekuvhiringidza muSMS kunobatsira kutsanangura kuti sei vanhu vane SPMS vasingakwanisi kuburikidza nemishonga yakawanda - inoshandiswa kurwara inoshandiswa kurapa RRMS (iyo inoshanda kuburikidza nekuderedza kupisa).
Clinical Picture of SPMS
Munhu ane RRMS (iyo inonyanya kurudzirwa yeMS) yakaitika zvikamu kana marara (anonzi kudzokazve) kwezvinetso zvinokonzerwa neurological.
Semuenzaniso, kuwirirana kwekutanga kwekutanga kunonzi optic neuritis , umo maitiro omunhu anosangana nehutano (chirwere chinokonzera uropi hunobatanidza uropi kune retina) chinopisa. Kudzoka kwe optic neuritis kunokonzera zviratidzo zvakadai sekurwadziwa kweziso pane kufamba uye kusvinura.
Nekudzoka kupi zvako, zviratidzo zvemunhu zvehutano zvinogona kugadzirisa zvachose kana zvimwe.
Mune mamwe mazwi, pangadai zvichiri kugadzirisa matambudziko emagetsi mushure mekudzokazve, asi ivo vakagadzikana uye havasi kuwedzera (kunze kwekuti imwezve kudzokorora munzvimbo imwechete yenheyo yenyoka inoitika).
Kune rumwe rutivi, mune MS inofambira mberi, munhu weW MS anotevera kutsika kwechipiri, kuwedzera kuwedzerwa munguva. Nemuenzaniso, munhu ane SPMS angaona kuti kufamba kwake kwave kwakawedzera mukati memwedzi mitanhatu yekupedzisira, asi haukwanise kuyeuka zuva rimwe kana kuti imwe nguva panguva iyo kufamba nekukurumidza kwakawedzera.
Nguva yekuchinja pakati peRRMS nePSMS
Chikamu chinonyengera pamusoro peSPMS ndechekuti nyanzvi zvino dzinoziva kuti inowanzove nguva yekushandura pakati apo RRMS inoguma uye SPMS inotanga. Mune mamwe mazwi, kliniki yemunhu inogona kuwirirana pakati pemhando mbiri dzeSMS-saka MS munhu angave achiwedzera kuwedzera, achiri kudzokazve pano uye ipapo.
Chii Chingayeuka Pfungwa Mushure mekuongororwa kweSMS
Kana iwe kana munhu waunoda akaonekwa kuti ane SPMS, pane zvinhu zvishoma zvokuchengeta mupfungwa.
Kutanga, zvakakosha kuziva kuti kuenda kumunda weSSPMS kubva kuRRMS haisi mhosva yako. Ichokwadi, vanhu vazhinji vachabva vachinjira kuSMS, pakupedzisira, kunyange chiyero ichi chinochinja chinenge chichiri chizere. Ichi ndechokuti kubuda kwechirwere chitsva -kuchinja kurapa kunoita kuti vamwe vanhu varwere zvirwere zvishoma nezvishoma.
Chechipiri, zvakakosha kuziva kuti seRRMS, zviratidzo zveSMS zvinoshanduka, sekuda kwekuwedzera kwekuwedzera, zvinoreva kuti vamwe vanhu vanove vakaremara kupfuura vamwe (uye nokukurumidza nokukurumidza kupfuura vamwe).
Chechitatu, kana MS yako iri kufambira mberi, nyanzvi yako yezveuroyoyoti inogona kuongorora kupindira kwekuvandudza, pamwe nemishonga yako, kuti uwedzere kushanda kwako uye kubatsira kuchengeta musimba simba uye kufamba.
Shoko Rinobva
Chinokosha apa ndechekuti kuongororwa kweSMS kunoda kusanganisa maitiro ekuongororwa, kusanganisira kuongorora kwepfungwa yepamusoro uye kudzokorora MRIs . Sezvo neRRMS, hapana slam-dunk kuedzwa. Pane kudaro, kuongororwa ndiko kliniki uye inobva mukugona kwechiremba yekuisa MS yako puzzle pamwe chete.
> Sources:
> Ontaneda D, Fox RJ. Progressive multiple sclerosis. Curr Opin Neurol. 2015 Jun; 28 (3): 237-43.
> National MS Society. (nd). Kuongorora MS yechipiri (SPMS).
> National MS Society. (nd). Inowanzobvunzwa Mibvunzo nezveSMS.
> Schlaeger R et al. Mutsara wesimbi grey nhau atrophy correlates ne multiple sclerosis disability. Ann Neurol. 2014 Nha.; 76 (4): 568-80.