Kuvandudza Unhu hweHupenyu
Amyotrophic lateral sclerosis (ALS) chirwere chinoparadza zvikuru. Sezvo vanhu vane ALS vachiwana simba, dzakawanda zvakakomba, kutyisidzira kwehupenyu kunoitika izvo zvinoda kutariswa neboka revashandi vezvokurapa. Mukuwedzera, kune humwe humwe huri hupenyu hunotyisa, asi zvisinei, hune hupenyu hwezuva nezuva kwevaya vane ALS. Kutaura nezvezvikamu izvi zveAlS zvinogona kubatsira kuvandudza hupenyu hwevaya vanotambura nehutachiona hwehutano hunoiparadza.
Pain uye Cramping
Nokuita kuti neuroni murunyanga rwekare rwemutsipa rwepelinha ruve rwakasvibiswa, ALS inogadzirisa zviratidzo zvinotumirwa kubva muuropi zvichienda kumisungo. Mukuwedzera kuutera, mishonga inogona kunzwa inonzwa kushungurudzika. Uyezve, vanhu vane ALS vangave vasina simba kuti vaite zvisingagoni kuverengwa zviduku zvishoma munzvimbo iyo vanhu vakawanda vanoita kuti vagare vakasununguka, izvo zvingaguma nekuvhiringidza kukuru nekurwadziwa.
Hazvisi pachena kuti zvakanakisisa sei kubvisa kusagadzikana kunogona kubatanidzwa neAlS. Dzidzo dzakaratidza kuti kurovedza muviri kune zvimwe zvinobatsira. Kutarisa kwakadzika uye kurapa kwepanyama kunogona kubatsira kubvisa kusagadzikana kunobatanidza nechirwere. Mimwe mishonga iyo yakaratidzwa kubatsira inosanganisira baclofen, dantrolene, uye tizanidine kumusana kwemasisita . Marwadzo anokonzerwa neAls anogona kurapwa nemishonga imwecheteyo inowanzoshandiswa kurapa kusagadzikana, zvakadai se ibuprofen kana acetaminophen, sekutungamirirwa nachiremba.
Sezvo chirwere chacho chichifambira mberi, mishonga yakasimba yeopiate-based inogona kudiwa asi inofanira kushandiswa nekuchenjerera nekuda kwehutano hwekufema kunetseka, kunyanya kune mumwe munhu atoora simba nehosha yavo.
Cognition
Amyotrophic lateral sclerosis dzimwe nguva inosangana nema- dementia . Anofungidzirwa kubva ku15 kusvika ku41-muzana yevarwere ve ALS vane maonero ekuziva, zvichienderana nekushandurwa kwezvinhu izvi.
Rudzi rwakawanda kwazvo rwemagariro evanhu anokonzerwa neAls runotarisana nehutano hwematongerwo enyika , hune hupenyu hunochinja uye husina simba rekutonga. Pane kubvumirana zvishoma pamusoro pekuti izvi zvinokonzerwa sei nekutenda kwema dementias, asi hapana chokwadi chiripo kurapwa nyore. Dzimwe nguva, kuratidzika kwekuora mwoyo kunogona kunge kuri kukonzerwa nokusarara kwakakwana kana kuora mwoyo, saka zvakakosha kuve nechokwadi kuti zvinhu izvi zviri kurapwa. Kana zvisina kudaro, vatungamiri vezvinetso izvi vanovimba nekushanda pamwe neboka rinogona kusanganisira mushandi wezvehupfumi, neurologist, uye chirwere chepfungwa kuti agadzirise maitiro evarwere. Sezvinogara nguva dzose, kuronga mberi ndicho chinhu chinokosha.
Mood
Nekusachinja kwose kusina kuitika kunouya nekuongororwa kweAIDS, zvimwe kuora mwoyo nekuzvidya mwoyo zvinofanira kutarisirwa. Zvinotoshamisa kuti manzwiro aya anowanzove asina kufanana kune avo vane ALS pane dzimwe zvirwere, zvakadai sekufa . Kana manzwiro aya aripo, anonyatsokwanisa kugadziriswa nekubatanidzwa kwekupa mazano, kurapa, uye mishonga, zvakadai sekurwisa dambudziko.
ALS inogona kukonzera dzimwe shanduko dzinofanidza kuora mwoyo uye kuzvidya mwoyo. Semuenzaniso, chii chinogona kunzwa sokuti kuora mwoyo kunogona kunge kuneta kunokonzera kushanda nesimba nekushaya kurara. Uyezve, nekuda kwekuchinja kwehutano hweAIDS, varwere vanogona kutambura kubva pseudobulbar vanobata, vanozivikanwa sevanongoratidzira manzwiro ekurwara kwekutaura, kana IEED.
Izvi zvinoreva kuti manzwiro avo haana kugadzikana, uye vanogona kuzviwana ivo kuseka kana kuchema mumamiriro asina kukodzera. Kubatanidzwa kwe dextromethorphan uye quinidine kwakaratidzwa kuva yakabudirira mukubatsira chiratidzo ichi.
Kurara
Kuora mwoyo muAlS kunogona kukuvadza kuneta, manzwiro, nekufungisisa. MuAlS, kukwanisa kuderedzwa kuwira kana kuramba kurara zvichida kunoguma kubva pakutanga kupera simba, kushushikana, kuora mwoyo kana kurwadziwa. Nzira yakanakisisa ndeyokuedza kubata chirwere chakakosha. Semuenzaniso, kurapa kwakakwana kwekupemha kwakaratidzwa kune kazhinji kunobatsira varwere ve ALS vanotambura nezvinetso zvehope.
Kana zvichibvira, kunyengedza kana kunyengedza mishonga kunofanira kudziviswa kunze kwekunge sarudzo yekupedzisira, sezvo izvi zvinowanzoderedza kufamba kwekufema.
Kukurukurirana
Chimwe chezvinhu zvinotambudza zvakanyanya zveAlS kurasikirwa kwekwanisi yekukurukurirana zvakajeka. Sezvo misungo yechiso nererynx isisina simba, nzira itsva dzekukurukura dzinoda kuongororwa. Nenzira yakanaka, pane nhamba huru yekushandisa dzakasiyana-siyana dzekukurukurirana dziripo, kusanganisira mazita emabhaibheri, maitiro ehurumende, Morse code, kushandiswa kwema anal sphincter, uye mafambiro eziso mawere, zvichienderana nehuwandu hwemunhu. Kushanda nemutauri wekutaura anogona kuve nechokwadi kuti kukwanisa kutaura kunoramba kwakasimbiswa kwenguva yakareba sezvinobvira.
Kushandisa Kuchengetedza Kwemajeri kune ALS
Nyanzvi dzekuchengetedza zvakanaka dzinonyanya kuchengetedza varwere vakasununguka. Izvi hazvisi chinhu chakafanana neve hospice , iyo inoratidziro yekuchengetedzeka kwepamusoro kune varwere mumwedzi yavo yekupedzisira mitanhatu yeupenyu. Sezvo zviratidzo zveAlS zvichifambira mberi, vanhu vazhinji vanobatsirwa nekushanda nevadzidzisi mukutarisira kwekuchengetedza uye kuvarisa kuti vaone kuti kunyaradzwa kwavo nekuremekedzwa zviri kuchengetedzwa pamwe chete.
Kukosha kwekugadzirira mberi
Chikamu chekuve wakasununguka nhasi kuziva kuti urongwa huripo hwemangwana. ALS chirwere chisingaperi , kazhinji chinotungamirira kurufu mumakore mashanu. Nepo vamwe vanhu vane ALS vakararama kwenguva yakareba, zvakakosha kuronga mberi. Uyezve, kurasikirwa kusingadzivisiki kwemaitiro anowanzobudiswa ekukurukurirana kunogadzira zvirongwa zvakajeka zvekuchengetedza utano mune ramangwana zvose zvinonyanya kukosha. Kunyatsoratidza kuti zvii zvinorapwa zvinenge zvichidiwa pasi pemamwe mamiriro ezvinhu, akadai sekuora muviri zvakakwana uye kunogona kuora mwoyo , zvinoda kufungwa uye kukurukurwa. Izvi ndizvo zvakasarudzwa, uye zvinokosha kuti zvido zvako zviremekedzwe. Kuronga hupenyu huno kana simba remugadziri rinogona kubatsira kuti uone kuti zvinodiwa zvako zvinoremekedzwa.
ALS Resources uye Support
Kana iwe uchangobva kuongororwa kuti une ALS kana imwe chirwere chinonzi neuron, iwe hausi woga. Vamwe vakabudirira pane zvauri kutarisana nazvo, uye kune mabhuku akawanda nezvimwe zvinhu zvinowanikwa kwauri. Kushanda ne-multidisciplinary neurology kliniki ingangove yakanakisisa yekusimudzira hupenyu hwehupenyu nekuvandudza hutano hwekutarisira. Iwe unoda zvakare rubatsiro kubva kune shamwari, mhuri, uye pamwe nevatarisi sezvo mamiriro ako ari kufambira mberi. Usanonoka kusvika kune avo vanoda kukutsigira.
Sources:
RG Miller, MD, FAAN, CE Jackson, MD, FAAN, EJ Kasarskis, MD, PhD, FAAN, JD England, MD, FAAN, D. Forshew, RN, et al. Dzidzira Parameter update: Kutarisira murwere neamyotrophic lateral sclerosis: Zvinodhaka, chikafu, uye kuporesa maitiro (kubvunzurudzwa kwakaratidza uchapupu). Mharidzo yeUnhu hweMitemo yeMitemo yeAmerican Academy of Neurology, Neurology, Gumiguru 13, 2009 vol. 73 no. 15 1218-1226
RG Miller, MD, FAAN, CE Jackson, MD, FAAN, EJ Kasarskis, MD, PhD, FAAN, JD England, MD, FAAN, D. Forshew, RN, et al. Dzidzira Parameter update: Kutarisira kwomurwere neamyotrophic lateral sclerosis: Kuchengetedza kwezviratidzo, zviratidzo zvekugadzirisa, uye kugunun'una / kushaya hutachiona (kubvunzurudza kwakaratidza uchapupu). Nhoroondo yeBumbiro reMitemo yeMitemo yeAmerican Academy of Neurology, Neurology October 13, 2009 vol. 73 no. 15 1227-1233