A J-Pouch Inogona Kupa Mukana Wekuvandudzwa Kwoupenyu
Ndinowanzobvunzwa pamusoro pekuvhiya kwangu j-pouch , yandaiva nayo muna 1999 pazera remakore makumi maviri nemaviri. Ndisati ndatanga kuvhiyiwa, ndakanga ndichitya uye ndakataura kune vamwe varwere vainge vane chirwere chej-pouch. Vamwe vanhu vangave vane chisarudzo chekuti kana kuti kwete kuve nekuvhiyiwa: mumamiriro angu ega kwaiva chirwere chekurapa. Kuvhiyiwa kweJ-pouch dzimwe nguva kunowanikwa muchitamba 1 kana matanho matatu, asi kazhinji kaviri mumatanho maviri, iyo chirwere chandaiva nacho. Kuvhiyiwa kwangu kwakaitwa kuchipatara chekune imwe nzvimbo nemunhu wekuchiremba wekuvhiya , uyo aingoita zvidho 5 zvisati zvangu. Pasi pane nhoroondo yega yega yezvakaitika kwandiri nej-pouch chirurgical, kunyange zvazvo ndakawedzera zvimwe zvinhu uye ruzivo kuitira kuti uve ruzivo rwakanyanya kune avo vanofunga kana kutarisana nekuvhiyiwa kuti vabate chirwere chekurwara.
Mazuva Asingaregi Kubva Pedyo Nezvokugeza
Ndinomuka mambakwedza kumanzwiro ekumanikidzwa nekuzara mu j-pouch yangu. Kazhinji mangwanani-ngwanani anotanga nenzira iyi, asi ini ndiri kuzvidzidzira. Pane humwe husinganzwisisiki, asi hazvina kufanana nekukurumidzira kwandainzwa ne ulcerative colitis. Ndinogona kukanganwa manzwiro acho zvishoma, kana ndikasarudza, kunyange zvazvo zvaizoramba zvisinganyanyi kunetseka kusvikira ndaenda kuimba yekugezera.
Mazuva ane ulcerative colitis akatanga kungoyeuka panguva ino, sezvo ini ndichipinda mumuviri mutsva wemuviri wangu. Kuvhiya kokutanga (kwemaviri) kwaive kwakaoma: Ndaive pasi peanesthesia kwemaawa akawanda uye ndakamutswa neleostomy yenguva pfupi. Kudzoka kwaive kwenguva yakareba, ndakanga ndisingabatsiri kwemavhiki matanhatu, asi yakanga isina kukwana uye ini ndakavandudza zuva rimwe nerimwe.
Ndine ruvara rukuru runoenda kubva kumusoro kwebhandi rangu kusvikira pasi pepisic bone, risina kuporesa sezvinenge zvandaida, kunyanya nemhaka ye prednisone ndakanga ndatora ndisati ndavhiyiwa.
Ndakanga ndisingakwanisi kubvisa prednisone ndisati ndatanga danho rekutanga re j-pouch sezvakaitwa nechiremba wangu chiremba: nguva dzose patakaedza kuderera zvakaderera kubuda ropa kubva kumaronda angu ekuronda kunotanga zvakare. Somugumisiro, ini pakupedzisira ndakakwanisa kudonhera pasi mushure mekuvhiyiwa kwangu. Handisi kufara pamusoro pekuora nokuti ini ndiri muduku, asi ndinofungidzira kuguma kwemazuva angu ebhini ndeyomutengo muduku wokubhadhara.
'Ostomy' Haisi Shoko rakasviba
The ileostomy handizvo zvandaitarisira. Pashure pemakore ekurasikirwa kwechirwere uye nekushamisika apo chirwere chekurara chikaitika uye pandichada imba yekugezera nokukurumidza, ileostomy yakaita seine rusununguko rwangu zvakare. Ndakangoenda ndokubvisa chikwama changu chemaosi paakazadza . Handina kuchinja nguo dzangu dzose - Ndaipfekedza zvipfeko zvakafanana zvandakaita pamberi peeostomy. Ndakatanga kuwedzera kudya kwangu , kunyange zvazvo ndakanga ndakangwarira kutevera mirayiridzo yangu yechiremba uye ndidzivisa ruzivo rwakafanana nemiti kana popcorn. Ndakatotanga kuisa kuremerwa, kwekutanga kuupenyu hwangu hwevanhu vakuru. Handina kumbobvira ndava nekutora kwemwedzi mitatu yandaiva nayo ileostomy. Handifungi kuti ndine unyanzvi hukuru mukubatanidza maostomy yangu, asi kunyange zvakadaro handina kumbobvira ndava nemibvunzo kana zviitiko zvinonyadzisa.
Kuchinja kashandisi yangu yeoostomy kaviri pavhiki kwakava chikamu chemuitiro wangu. My stoma yakava chimwe chikamu chemuviri wangu. Zvaiita sechinhu chisina kunaka, dai ndaifunga nezvazvo zvikuru. Pashure pezvose, stoma chikamu chemukati mako, uye chaive kunze kwemuviri wangu! Asi, iyi ndiyo yekuvhiyiwa kwakandibvumira kurarama, tarisiro kwenguva refu. Pasina iyo, dysplasia uye mazana emapuropiti akawanikwa muhuro yangu angave akave nemigumisiro yekenza yekoloni uye yakaipisisa mhinduro kwandiri.
My inferostomal therapy (ET) mukoti waishamisa. Ndakasangana naye ndisati ndatanga kuvhiyiwa, uye akabatsira kuziva kugadziriswa kwe stoma yangu. Mamiriro ezvinhu anonetsa, stoma inogona kuiswa apo chiremba anovhiya anofunga kuti zvingava zvakanaka, asi ndaive neropafadzo yakakwana yekuve nenguva yekugadzirira. Ini uye mukoti akandibvunza pamusoro pemararamiro angu uye marudzi ezvokupfeka zvandaipfekedza, uye takasarudza pamwe kuti ndaisa stoma yangu. Anatomy inobatsirawo mune zvekusimudzira - ndakaudzwa kuti vamwe vanhu miviri nemisumbu zvakanga zvakasiyana uye kuti dzimwe nguva stoma yakanga isingagoni kuiswa panzvimbo iyo murwere aida.
Mune mhaka yangu, zvinhu zvakazobudirira zvakanaka, uye mukoti wangu ET vakashandisa Sharpie kuratidza nzvimbo yakanakisisa padumbu rangu re stoma yangu.
Kuenda "Kazhinji" zvakare
Pandainge ndakagadzirira chikamu chechipiri chekuvhiya kwangu j-pouch (kutora-pasi, kana kuchinja kweleostomy), ndakanga ndine hanya zvikuru pamusoro pokupinda muvhiya zvakare. Ndakanzwa zvikuru! The ileostomy yakanga isina basa guru! Ndakanyatsoda here kupfuura mune imwe chirwere uye kupora? Asi muzvokwadi, chirwere chechipiri chakanga chisina kunyanya kufanana nechokuita seyokutanga, uye nguva yekudzidzira yaiva shoma shoma. Ndakanga ndisisiri kubasa kwevhiki mbiri chete uye ndakanga ndiine zvishoma zvishoma zvekurwa kwemishonga inorwadza. Chinhu chinoshamisa kwazvo chakanga chiri kushandiswa kune j-pouch itsva. Hongu, ndakafanirwa "kuidurura" kazhinji pazuva, asi izvozvo hazvina kundinetseka zvachose. Ndinoziva vanhu vazhinji vane hanya pamusoro pekuenda kune yekugezera kakawanda mushure mekuvhiya kwavo kupfuura vasati vambovhiyiwa, asi munyaya yangu haisi kuzova nyaya. My ulcerative colitis yakarondedzerwa seyakasimba, uye kunyange panguva yekudzoka kubva pakuberekwa kwangu kokutanga ndakanzwa zviri nani kudarika ini ndakaita apo chirwere changu chakanga chakaipa kwazvo.
Pakutanga kufamba kwangu kwepachifu kuburikidza ne j-pouch yangu yakanga ine mvura uye, chokwadi chinotaurirwa, chinorwadza . Vakapisa. Asi ndakadzidza nokukurumidza izvo zvikafu zvekudzivisa: zvokudya zvinonaka, zvokudya zvakabikwa, mafuta akawanda, uye yakawanda yekaseine. Ndaivewo nemamwe maitiro akawanda okuchengetedza marwadzo nekupisa kune zvishoma: kushandisa shanduro cream pamucheto wangu, uchishandisa mvura inopisa panzvimbo yemapepa embudzi, uye kudya zvokudya zvinogona kubvisa chigaro changu, zvakadai sepanut butter kana mbatata. Chiremba wangu akandipa mazano mashomanana pamusoro pezvinhu izvi, asi mamwe acho ndakadzidza kuburikidza nekuedza uye kukanganisa, nokuti munhu wose akasiyana kana achiuya pakudya. Zvakatora nguva kuitira ganda rangu re perianal kuti rimire uye kupisa kumira. Pane imwe nguva ndakatora zvokudya zvangu pasi pesimba, chigaro changu chakatanga kusimbiswa, uye ndakanga ndiri muimba yekugeza zvishoma nezvishoma. Zvechokwadi, pese pandinoona chiremba wangu chiremba anobvunza kuti mangani ekufambisa kwandinoita ine zuva, uye ini zvechokwadi handichengetedzi zvakare.
Kurwiswa kwemapfupa kwandiri kunowanzova mheremhere, asi ndave ndakanyanyisa kunzwa ndine nyadzi pamusoro pavo. Kuvhiyiwa ndakanga ndaponesa hupenyu hwangu, kunyange zvazvo hwakachinja maitiro angu nokusingaperi. Kana ndichinyatsocherechedza nekudya kwangu ndinogona kuva neche-yakagadzika zvigaro, asi ini ndinowanzoshaya hanya nekudya kwangu. Ndakanga ndiine ulcerative colitis kwemakore gumi, dzimwe nguva ndinorarama pasina chinhu kunze kwegelatin uye muto, (uye panguva imwe chete yevhiki isinganzwisisiki kutenderera muchipatara, zvachose, kwete kunyange mvura) uye iye zvino kuti ndinokwanisa kudya zvokudya, kudya kwechokwadi, zvakare, ini handidi kuzviisa pasi pezvokudya zvinokuvadza. Ndine mitsara - Handingambofi ndakadya saladhi nemateu inofanira kuteverwa ne popcorn chaser - asi ini ndinogona kunakidzwa nekudya zvakawanda mazuva ano zvandisingambofungi kudya muchirwere chepachirwere chemazuva angu.
Asi Icho Ichi "Mushonga" here?
Vanhu vanowanzoreva chirwere chej-pouch se "chirwere" chekuonda kwepachirwere. Handinzwi sokuti iyi inotsanangurwa zvakarurama. Kubviswa kwechirongwa chikuru kunogona kuonekwa sei se "mushonga"? Kwandiri, kurapa kwaizova kurapa kwemukati uye kuguma kwezviratidzo. Nguva yemberi ye j-pouch yangu isingazikamwi kwandiri. Ndinogona kuva mumwe weavo vanokura pouchitis : chirwere chisina kunzwisisika chinokonzera zviratidzo zvakadai sefivha uye chirwere. Pouchitis inowanzobatwa neprobiotics nemishonga inorwisa mabhakitiriya, asi inowanzoita kuti idzoke zvakare. Chiremba wangu anonyatsozivawo kana ini ndichiri kusununguka kune zvinetso zvingaita sezvinonzi blockages kana kunyange mamiriro ekuwedzera-mumukati anokwanisa kuenda nemaoko nemaoko ane chirwere chinoputika (IBD) seArthritis .
Epilogue
Ndinoziva nzira yangu kubva pachirwere chechilonda kusvika j-pouch yakave iri nyore nyore. Izvi ndinozvipa unyanzvi hweboka rangu rokuvhiya, asiwo nekuda kwangu kutevera mirairo yangu yechiremba kune tsamba. Ndasangana nevamwe vakawanda vanofarawo nemapuragi avo, asi ini ndakasanganawo nevamwe vakarasikirwa nemapuragi avo kuti vaite zvekupititakiti zvakare, kana kuti nokuti izvo zvakaonekwa kuti sealcerative colitis zvakagadziriswa kuva chaizvo chirwere cha Crohn. Ndave ndichiziva vamwe vakawana zvinetso zvemashure-operative zvakadai sezvirwere. Vamwe vakadzi vane j-chikwata vanowana kubereka kwavo kwakagadziriswa. Zvinenge zvisingabviri kuziva kuti kuvhiwa kunobata sei munhu mumwe chete, asi kwandiri, zvinhu zvose zvave zviri nani.