Mapoka ekukurudzira kune avo vane chirwere cheCrohn & Ulcerative Colitis
Kuonekwa kwechirwere chechirwere chirwere (IBD) kunounza mutsva wemibvunzo nematambudziko. Uye varwere vazhinji vanoenda kunotsigira pakunzwisisa zvirwere zvavo nekubatana nevamwe varwere. Kune avo vanorarama neCrohn's disease uye ulcerative colitis, kune masangano akawanda ekubatsira uye masangano asina ruzivo anopa hutano hwakasiyana-siyana kubatsira kubatsira kufamba upenyu neBD.
Mapoka akadaro anopa zvinhu zvose kubva mubatsiri-mumunhu, kutumira foni mitsetse yekubatsira, kubatsira nemari yekurapa nemibvunzo yekuremara. Kubatana nesangano rekutsigira kweBDI uye kugamuchira ruzivo uye rubatsiro runopiwa ndicho chikamu chinokosha cherwendo rwevarwere uye chimwe chinogona kubatsira kuderedza mamwe matambudziko eBD. Pasi apa, tsvaga mapoka ekutsigira varwere vari muUnited States, Canada, neEurope avo vakatsaurira mari yavo kubatsira varwere.
Crohn's & Colitis Foundation
Crohn's & Colitis Foundation (iyo inozivikanwawo seSheart) ndiyo huru yevanhu vasiri purogiramu yakatsaurirwa kushumira vanhu neBD muUnited States. Yakagadzirwa kubva muna 1967 seThe National Foundation for Ileitis uye Colitis, Foundation inotsigirwa kuburikidza nemipiro kubva kune vatsigiri nevashambadzi. Crohn's & Colitis Foundation ine ruzivo rwakakura, kusanganisira Kutora Matanho uye spin4 Crohn's & colitis.
Vanhu vane IBD vanogona kushandisa zvisiri izvo chete mapoka ekutsigira anopiwa munzvimbo, asiwo:
- Imwe yemazhizha yezhizha yakagadzirirwa vana vane IBD
- IBD Help Center, apo varwere nevatarisiri vanogona kuyanana ne-IBD nyanzvi kuburikidza ne email kana foni
- Crohn's & Colitis Community, boka rekutsigira rekutsvaga apo varwere nevatarisiri vanogona kugona zvese
- Mazuva ano mapurogiramu ekutsvakurudza anotsigirwa neSheyo nevanoshanda navo
- Utsotsi hwekukurudzira hunoendesa mberi zvinodiwa nevarwere uye vashandi vehutano mune hurumende uye vanopa rubatsiro rwekutsvakurudza mari
- Sangano reNational Council of College Leaders (NCCL), boka revechidiki-iro rinoshanda kuwedzera dzidzo nekusigirwa kune vanhu vane IBD kuburikidza nehutano hwakasiyana-siyana hwekusimudzira uye kuunganidza mari
- Nhengo kune Crohn's & Colitis Foundation yevanhu vane IBD kana ani zvake anofarira kubatsira avo vane IBD (nokuda kwechipo chiduku)
Crohn's naColitis Canada
Crohn's naColitis Canada yakatangwa muna 1974 neboka revarwere makumi maviri nevatatu vakagadzirirwa neBD. Nheyo dzinopa hutano hwakasiyana-siyana kune avo vane IBD vanogara muCanada, iyo inonyanya ndiyo imwe yenyika dzakawanda dzakakanganiswa nezvirwere.
Kubva pakuzvininipisa kuchitanga mukirasi yakazara nevanhu vaifunga kuti kwakanga kusina dzidzo yekudzidzira kana tsvakurudzo dzinotsigira avo vane IBD kana kurapa, yakakura kuva nyika yose ine zvitsauko 45 zvemukati. Kusvika iye zvino, yakamutsa $ 100 mamiriyoni.
Crohn's naColitis Canada vanotsigira mapurogiramu akawanda ekutsvakurudza izvo zvinosanganisira kwete chete kukurudzirwa kwemishonga mitsva, asiwo iyo inowedzera kuvandudza hupenyu hwevaya vane IBD. Imwe tsvakurudzo inotsvakurudza ndeye GEM Project, iyo inotsvaka kunzwisisa zvikonzero zveBD nekudzidza avo vari pangozi yekuvandudza chimiro chechirwere.
Vanhu vane IBD vanogona kubatanidzwa naCrohn's naColitis Canada kuburikidza nezvirongwa zvavo zvakawanda zvinosanganisira:
- Gutsy Kufamba, kufamba kwekubhadhara mari kunobatsirawo varwere kuti vakwanise
- Musasa Got2Go (nzvimbo mbiri muCanada)
- Idzo chirongwa cheBD scholarship chinopa 10 munhu mumwechete nguva yekudzidzira zvikwereti zvingada kusvika madhora 5 000 kune vadzidzi vane IBD vari kuwana dzidzo yepamusoro-seconda
- The Gutsy Learning Series inopa mavhidhiyo akawanda ayo vanhu vane IBD vangashandisa kudzidza zvakawanda pamusoro pehosha yavo
Crohn's & Colitis UK
Crohn's & Colitis UK ishamwari inobva kuUnited Kingdom inopa rubatsiro uye ruzivo kune avo vanorarama neBD. Mukuwedzera, inotsigira uye inopa mari yekutsvakurudza inotsvaka "kuvandudza hupenyu hwevanhu vemazera ese vane chirwere cheCrohn kana chironda chekuonda."
Yakagadzwa muna 1979, Crohn's & Colitis UK ine hurongwa hwakafanana MuKritain neMhuri Network inopa zviitiko zvinonakidza uye mazano kune vabereki vevana vane IBD vane zvinetso zvakakosha, zvakadai sokufamba nechikoro chechirwere nechirwere chisingaperi.
Zvimwe zvipo izvo Crohn's & Colitis UK inopa zvinosanganisira:
- Grants Scheme umo varwere nevatarisiri vanogona kushamwaridzana nevezera ravo kupa zvikoro zvekudzidzisa uye mari yezuva nezuva
- Dambudziko rekuremara iro vanhu vane IBD kuUnited States vanogona kukodzera uye vanogona kufamba zvakanaka neR Crohn's & Colitis UK rubatsiro
- Mushandi Wepurogiramu Dzidzo inopa mu-munhu zviitiko zvevarwere kudzidza zvakawanda pamusoro pehosha yavo
- Famba Izvo! zviitiko kuUnited States izvo zvinopa mukana wevatachiwana kuti vawane mari yeCrohn's & Colitis UK pamwe chete nekusangana nevamwe varwere nevatarisi
Crohn's & Colitis Australia
Crohn's & Colitis Australia (CCA) isangano risina purogiramu rakazvitsaurira "kuita hupenyu hune hunodiwa" kuvanhu vanogara neBD muAustralia. ICC yakavakwa makore anopfuura makumi matatu apfuura uye yakambozivikanwa seCrohn's and Colitis Association yeAustralia.
ICCA inobatanidzwa mune zvidzidzo zvekutsvakurudza uye inowedzera postgraduate tsvakurudzo dzevakadzi, asi chinangwa chavo chikuru ndechokutsigira varwere veBDD. Mari yekubhadhara yemapurogiramu avo anosanganisira zvipo uye munharaunda yekubhadhara mari.
Vanhu vanokonzerwa neBD vanogona kuva nhengo uye vanogamuchira ini ndiri muInsight , magazini yeCCA , kadhi "Haikwanisi kumirira," nekusvika kune chikamu chechikamu chete chewebhu. Mamwe mapurogiramu nemabasa ayo Crohn's & Colitis Australia anowedzera anosanganisira:
- Muchi-manheru mapoka ekutsigira kuAustralia ayo akazarurirwa kune vanhu vane hupenyu hwavo hunokonzerwa neBD
- Pop-Up Makambani ekubhadhara mari yekutsigira gwaro reBD
- IBD Helpline (1-800-138-029) iyo inopa rubatsiro rwemweya uye kutumira kune foni
- Kuchinja Upenyu Chinetso umo vatori vechikamu vanogona kumhanya, kushambira, kana kutasva mabhasikoro kuti vawane mari inotsigira mapurogiramu eCACA
Kubatanidza Kurapa Crohn's naColitis
Kubatanidza Kurapa Crohn's naColitis (C kusvika C) isangano risina maturo risina kubatsira rakagadzirirwa kutsigira varwere vane IBD. Yakatangwa naStacy Dylan, amai vemwana vanogara neCrohn's disease, uye Dana Zatulove, amai vemwana vanogara ne ulcerative colitis, boka racho rinozvipira kuongororwa kwekutsvakurudza kunotsvaga kunzwisisa zvinokonzera IBD pamwe nekudzivirira kune avo dambudziko guru rekuvandudza IBD.
C kusvika kuC inokwidza mari kuburikidza nemipiro, gala gore negore, Rock the Night yekurapa Crohn's naColitis, Chip mumitambo yegorofu yaCrohn, uye vana vanoverenga piano. Vanoshandawo pamwe neCedars-Sinai Medical Center muLos Angeles kuti vape mapoka ekutsigira-kumunhu kune avo vanotambudzwa neBD, kusanganisira varwere, vatarisiri, vana, uye mhuri.
Vasikana Vane Guts
Vasikana neGuts (GWG) sangano risina maturo rakagadzirwa naJackie Zimmerman mushure mokunge mhinduro yevamwe vhiki yekusvitsa yekusangana mumunhu nevamwe vakadzi vane IBD yakaratidza kudikanwa kwekutsigirwa kwevakadzi. Vasikana Vane Guts Kudzorera ndevamwe vhiki yegore yekuungana pamwe chete iyo inobatsira vakadzi neBD kusimbisa ushamwari hwakasimba uye kudzidza kurarama zviri nani nehosha yavo.
GWG inomutsa mari kuburikidza nezvipo zvakakwana uye zviitiko, zvakadai sepasi rose 5k. Vanopawo gungano reBD neboka rega rega re Facebook revakadzi rakagadziriswa neBD, mavhidhiyo emashoko, uye snail-mail pen pen.
ImproveCareNow
ImproveCareNow iri boka risina purogiramu rakasimbisa ruzivo rwevarwere, mhuri, vatarisiri, uye vashandi vehutano kuti vawedzere kuchengetwa kwakagamuchirwa nevana vanogara neCrohn's disease uye ulcerative colitis. Vanotsigira tsvakurudzo yakagadzirirwa uye inoitwa kuti inosanganisira varwere nemhuri dzakagadziriswa neBD.
Batsiro rakapiwa kumusangano wevarwere veBBD neUkuvandudzaCareNow inosanganisira zvivako zvekurarama neBD, zvakadai sekuzvigadzirisa mabhuku, chiremba vanoshanyira varimi, uye ImproveCareNow Exchange, nzvimbo yakachengeteka iyo vatori vechikamu vanogona kugovana ruzivo. KuvandudzaCareNow misangano yemunharaunda inobatwawo gore roga roga mugore rekupera nekuwa. Sangano rinokurudzira mari kuburikidza nemipiro yakananga uye kushamwaridzana nemabhizimisi uye vavakidzani vemunharaunda.
Shoko Rinobva
Kushandura kuongororwa kweBD chiitiko chakaoma ndicho chikonzero varwere havafaniri kuendesa voga. Vanachiremba uye vamwe vanochengeta vanogona kuva zvinhu zvinokosha, asi vanhu vanorarama neCrohn's disease uye ulcerative colitis vachada rubatsiro rwakanyanya mukufamba kwavo kwezvirwere.
Ichi ndicho chikonzero mamiriyoni evanhu vanotsigira varwere-akanganisa akaumba zvikuru munharaunda dzeBD dzakawanda, dzakadai seUnited States, Canada, uye Europe. Vanhu vane IBD vanofanira kushandisa zvakanakisa zvipo izvozvi maBD ekutsigira mapoka anopa kuitira kuti vararame hupenyu hwavo hwakanakisisa hukwanisika.