Chii chatinoziva nezve autism uye zvekunamata? Bhuku raBill Stillman's, Autism uye Mwari Connection, inonyanya kukosha kweanecdotes kubva kuvabereki vanofunga kuti vana vavo vane autism vane ukama hunokosha nehuMwari hwemweya. Bhuku rakagamuchira mhinduro dzakanaka - uye zvakawanda zvevabereki vanofarira. Bill akabvuma kugamuchira mhinduro dzemibvunzo, dzimwe dzakaonekwa neni nevamwe vakatumwa kwaari zvakananga nevadzidzi.
Sezvo ari nhengo yemasangano evanhu vega (iye anorwara neAsperger Syndrome), Bill anounza maonero asinganzwisisiki kumurangariro.
Mubvunzo: Unosarudza sei kana chiitiko chakataurwa chiri chepamutemo, unyengeri, kana mugumisiro wekufungidzira kana imwe dambudziko rehutano?
Mhinduro: Mukuziva chokwadi chezvakataurwa, ndinoshandisa nzira mbiri. Kutanga, pane ringori yezvokwadi pane izvo munhu ari kuzivisa? Nemamwe mazwi, haashambidzi neni kuti mumwe munhu anotaura aizotapira-shati uye achakudza chiitiko che autistic se "ngirozi duku dzaMwari" nokuti haisi hupenyu chaihwo; uye ini ndinofunga kuti inogona kuva mararamiro akaoma zvikuru kune mumwe munhu pamutambo pamwe chete nevabereki vake, vatarisi, uye vadzidzisi. Izvozvo hazvirevi kuti chipo chepamweya hachigoni kuratidza, asi kana chikaitika chiri pakati pekuedzwa kwezuva nezuva nekushanda kwekudzidza pamwe nekugara.
Uye, chechipiri, inoita izvo mumwe munhu anotaura kuti "akakodzera" mukati memaitirwo akave atoitika mubasa rangu, kana kuti inopindirana nekutsvaga kwevamwe vanyori vezvokunamata?
Kuva muhutano hwepfungwa-kutadza kwepfungwa munharaunda kwemakore anenge makumi maviri, ndinoziva zvakakwana pamusoro pekushanda kwepfungwa yekurwara kwepfungwa kuti ndione "mireza matsvuku" kana zviratidzo zvekugadzirira pane zvandiri kundiudza; apo kutsvakurudza kwangu kunofunganya, izvi zvakangoitika chaizvo zvishoma, zviitiko zvishoma.
Kazhinji kacho, vanhu vanongonzwa vazorodzwa kuziva kuti havasi mapenzi, kwete voga mune zvakaitika, uye vakawana munhu anonzwisisa.
Mubvunzo: Pane here tsvakurudzo inotsigira pfungwa yokuti vanhu vasina unyanzvi hwemashoko vanogona kunge vakazvibatanidza kune mamwe marudzi ezvokushandisa?
Mhinduro: Ndizvo zvangu zvitsvakurudzo, asi, kwandiri, zvinonzwisisika. Iyi yose "God connection" pfungwa ichiri, yakanyanya kwazvo, uye, sevadzidzisi vako vanoziva, vanhu vane kukuremara kwekukudziridza kusanganisira autism, vakambove vakaparadzaniswa, vakadikanwa, vakazvidzwa, uye vanoshungurudzwa. SekuMadokero tsika, hatisi "apo" asi zvakadaro maererano nemafungiro edu kuti vanhu vakadaro vanokoshesa mu "kuva" kwavo, uye vanogona kubata kunzwisisa, huchenjeri, uye zvipo; kunyange zvazvo Native American tsika inobvumirana nayo iyi pfungwa.
Kune ini, iripo yakanyarara, sekuwanda kwezvinyorwa, hazvisi izvo zvakasiyana kune munhu wepamusoro-soro wechitendero anotora mhiko nemaune yekunyarara-sei? Saka pane zvinodiwa zviviri mune izvo uye zvatinokoshesa: vanhu vanofungisisa, vanonyengetera, vanoita yoga vanoda kusvika kune imwe nzvimbo yezvokunamata iyo vamwe vese vanowana zvisikwa nekugara vakanyarara, vachitarisa kudzokororazve kana kushevedza izwi (mantra) , nekuziva zvinhu zvose zvinoonekwa nekusaoneka.
Uye kune tsvakurudzo yesayenzi yekutsigira izvi, sezvandinonyora muVistism uye naMwari Connection.
Mukuwedzera, tinoziva kuti kunzwisisika kwekunzwa kwevakawanda zvekutengesa kunogona kuva kwakanyanya uye kunorwadza zvikuru kutsungirira; asi izvi zvinogonawo kukweretesa kune unyanzvi hwekunzwisisa huzhinji nenzira iyo munhu anenge ari bofu ane zvakagadziriswa-zvakagadziriswa, pfungwa dzinopesana. Chipo chemweya chinopindirana nekuti tinogamuchira sei ruzivo rwepamusoro-purogiramu, dhiyabhorosi yepamusoro inofananidzwa nemanzwiro edu; kwete zvose zvinogadzirwa zvinoreva uye zvakajeka kwatiri. Kazhinji kuenzanisira kukurukurirana kunodikanwa kutora maitiro, kufanana nemunhu wevististic uyo aifamba nengoro yepayipi yepayipi; vamwe vaifunga kuti ndeyekuda kwekusagadzikana-kuti akanga ari autistic, akachera, uye asingateereri.
Asi kujekesa hueroglyphics yekukurukurirana, uye nekufungidzira njere dzemurume wacho, ndakaona kuti akanga ari pedyo nebaba vake vakafa uye akanga apedza nguva dzakawanda achifara achifamba nababa mumotokari yake-motori yakafanana neyekambani yemurume. Sezvo murume uyu akanga asina mimwe zviyeuchidzo zvinooneka zvababa vake (semifananidzo kana mementoes chaiyo), zvakajeka kuti goroyi yemotokari yaiva chikonzero chekuita pfungwa yekuona-mafirimu emazuva anofara.
Mubvunzo: Unofunga here kuti pane "zvinogadziriswa" pfungwa, zvingave zvekurapa kana kuti kunzwisisa kwakanakisisa, izvo zvingauya kubva pakutsvakurudza kwako?Mhinduro: Zvechokwadi, uye pakutanga uye zvakanyanya ndiwo pfungwa: "ngwarira pfungwa." Ndakaita shamwari dzevanhu vakawanda vega autistic kwemakore avo avo, kunze, varipo sevasina simba nokuti havatauri, vane mitezo isingatendwi, uye yakanyorwa "Pfungwa dzakarega." Zvisinei, zvakare, pane zvinyorwa zviviri pakuti isu tinowanzofungidzira pfungwa dzevanhu vanouya nenzira dzakafanana, dzakadai savo vane Cerebral Palsy, ALS kana chirwere chaLou Gehrig, Parkinson, Tourette's, Hodgkin, uye nokudaro.
Dzimwe shamwari dzangu dzinoshandisa nzira dzekutaura kuti dzikurukure, uye dzakaratidza huchenjeri hwakasimba hwakazara nenyasha uye maonero kupfuura izvo zvingafunga kuti zvinowanzoitika nekuda kwekutambura mukunyarara (kuvapo kune vamwe vakayananidza). Dambudziko redu sevabereki, vatarisiri, uye vadzidzisi nderokuputsa zvinyorwa uye maitiro ezvinyorwa kuitira kuti zvikwanise kugadzirisa matanho pakunzwisisa. Tine zvakawanda zvokudzidza kubva kune mumwe.
Chimwe chikamu chechipiri, chinovaka kubva pachirevo chekutanga "kufungidzira njere", ndiwo matanho matatu (kana "zvishamiso sezvandiri kutaura kwavari muAustism uye naMwari Connection) kuti aite izvo zvinogona kugadzira kuchinja kwekuchinja. Iyi nhanho mitatu inogadzirisa izwi rekuremekedza uye ruremekedzo, uye inoita kuti tive vamiririri vekushandura mukubatana kwedu nemunhu wega autistic pamwe nevamwe vanenge vakamupoteredza.
Mubvunzo: Unofunga here kuti zvimwe zvekufarira mubhuku rako nemafungiro ako zvingabva kune zvinodiwa nevabereki kuti vawane matarenda chaiwo mumwana anoita kunge ane mashoma mashoma?
Mhinduro: Ngatitorei kuti vabereki vevanhu vane autism vanogona kuva nehupenyu hwakaoma zvikuru. Hapana munhu akambotaura neni akakumbira chimwe chinhu kunze kwemukana wekunzwika, saka hapana pfuma yega inobatanidzwa. Uye ini handisi kutsvaga chero chinhu chisati chinyatsozivikanwa kumhuri dzakawanda; Ndiri kungovhenekera chete, kuunza chimwe chinhu chekuvhenekera icho chaimbove "chakavharwa." Saka ini handina "kusika" iyi yose "autism uye Mwari kuyanana" kufamba, yakanga iripo iko, ichizarura zvinyararire asi zvechokwadi.
Vose vana vanokosha uye, sevanhu, isu tose tinokomborerwa nezvipo uye matarenda pasinei nokuti tiri vanaani.
Mubvunzo: Pane chimwe chinhu mukutsvakurudza kwawakaita chinoratidza kuti vanhu vevististic vanowanzova nezviitiko zvemuMweya kana zvepakati pane vamwe vanhu here?Mhinduro: Ndinotenda kuti isu tose tine simba rokutora zvipo zvedu zvemweya izvo vanhu vose vakakomborerwa; uye chinhu chakanaka pamusoro pekuva munhu ndechekuti zvichatarisa zvakasiyana mumunhu wese, nokuti isu tose tiri vanhu vakasiyana.
Dambudziko nderokuti vanhu vazhinji vane chirwere che "neurotypical" "vanovharwa" kubva pakuziva izvi izvi pachavo nokuti vanobatanidzwa mumatambudziko ezuva nezuva hupenyu; kana, zvakanyanya, ivo vanozvifungidzira, vane makaro, simba-vane nzara, uye vane hanya chete nekugutsa zvido zvavo. Vanhu vanopedza nguva muga voga vachicherechedza nekudzokorora zvisikwa; kuratidza kuonga; kunyengetera kana kufungisisa; kuita zvinhu zvisingabatsiri, kusazvipira uye zuva rega rega, maonero angu, zviri nani pakuziva kuti ivo pachavo mune zvekunamata-uye pfungwa iyi inotsigirwa nevamwe vanyori vezvomweya nevadzidzisi vezvechitendero.
Ini ndinotendawo kuti vanhu vanozvarwa mumararamiro akaoma zvikuru, akadai seavo vane autism, vanofanotarisirwa kuzviita, uye havasi kungotarirwa munyika ino kuti vazvidzivirire pachavo vasina kuchengetedzwa kana kubhadharwa. Ndave neve vabereki vakawanda vanondisangana neni kuti ndiratidze kuti ivo vanhu vari nani pane zvavangadai vave-kuti ikozvino mune zvekunamata kwavasina kumbove-kare nekuda kwekubereka mwana ne autism.
Vamwe vabereki vakawanda vakaudza kuti vana vavo vakavaudza kuti vakasarudzwa vasati vaberekwa.
Shamwari yangu Michael anozviverengera zvakanakisisa muVistism uye Mwari Connection paanokurukura kuva "mweya wose muvhu rakaputsika" iyo yaanopikisa ndiyo inopesana nezvinoitwa; iyo mvumo yaanova nayo ndeyokuwana zvakakwana kuna Mwari uye mhinduro pfupi kumibvunzo yake yakanyarara kuitira kuti inzwisise nyika ine ruvengo uye nzvimbo yayo mairi.
Mikaeri anotaura kuti, kazhinji, kune avo "mweya yakaputsika mumitumbi yose" mhinduro dzakadaro dzinoziviswa kune vamwe chete kana vachingopfuurira.
Mubvunzo: Wakauya sei kurondedzera "autism uye Mwari?"
Mhinduro: Ndagara ndine chido mumamiriro ezvinhu uye zviitiko zvinoshora tsananguro inonzwisisika kana tsanangudzo yesayenzi-Ndaigara ndichifadzwa nepfungwa yokuti vanhu havana mhinduro dzose. Uye ndaive neropafadzo yekukura mumhuri umo zvinhu zvakadaro zvaigona kukurukurwa pachena uye zvisingashamisi, zvisingazobvumirwi sezvisingakwanisi.
Ndakatanga kuona "Mwari kuwirirana" mubasa rangu semuongorori weavist anenge makore matanhatu kana manomwe apfuura. Panguva iyoyo, ndaishanda mumataundi mashoma mumaruwa ePennsylvania ndichipa mazano masangano akawanda emarudzi akawanda asingazivikanwi. Zvisinei, ndakatanga kuchengeta-uye kudzidza nezve-nzira yakasimba yezvokunamata yekuve yevanhu vane autism wandinenge ndichibvunzurudza. Zvimwe zvitsamba zvakatanga kubuda zvakadai sekuzivikanwa (kuziva zvaizotanga kuitika zvisati zvamboita), telepathy (kuchinjana, kana kupinda mukati, mafungiro nemifananidzo kune imwe), kutaurirana kwezvipfuwo (kunyarara mukutura nekududzira "animalpeak" kubva kumusha kana feral mhuka), kuyanana nemunhu waunoda muMweya, kazhinji sekurukuru (tsanangudzo yakasimba pamufananidzo wemufi uye hukama hwepedyo, ruzivo rwakanga rusingazivikanwi pamusoro pehupenyu hwavo), maonero emweya yakatsauka ("mweya"), nekudyidzana nebenini , ethereal masangano, anotsanangurwa sevatumwa nevamwe.
Ndakasvika pakunzwisisa kuti, kune izvo zvakagara zvataurwa, zviitiko izvi zvakanga zvakajairika-zvisikwa, zvisingaitiki.
Sezvandakadzidza zvakawanda nezvedzimwe nzvimbo idzi, ndakafunga kuti, "Mai vangu, kana ndiri kuona izvi zvichiitika mumataundi mashoma mumaruwa ePennsylvania, chii chiri kuitika kune dzimwe nyika ?!" Saka ndinoisa vamwe vakangwarira "Vanonzwa" nenzira yeInternet postings uye mapurisa emashoko, uye aifara zvikuru kuva nekufungira kwangu kwakagadziriswa nevakawanda uye vazhinji vevabereki nevashandi vakatanga kunditaurira nezvezviitiko zvavo. Vanhu mazana emakiromita vari voga-avo vakanga vasati vamboonana-vose vaindiudza kusiyana kwemashoko akafanana.
Iyi nyaya yakaumba chikonzero chekutsvakurudza kwangu mukugadzira Autism uye Mwari Connection, asi ini ndinogonawo kukuudza kuti inongova chikamu chemukana mukuru wechando.
Somugumisiro wezvose zvandaive ndichidzidza, ndaifanirawo kushandurwa mumweya neni. Chinyorwa changu chepakutanga, chekushanda chebhuku chacho chaiva Autism uye Clairvoyant Connection, asi ndakakurumidza kuona kuti zvakanga zvakanyanya kuremekedza kupfuura izvozvo; kuti mhuri dzorudo dzandakasangana nadzo dzaiwanzwa kunzwa mupfungwa yemweya kana yechitendero, uye ndaiziva kuti paizove pasina musoro kunze kweAustism uye Mwari Connection.
Mubvunzo: Unokurudzirei vanhu kuti "ita" nemashoko aya kana iwe wakatsigira ivo?Mhinduro : Kutanga, nzwisisa kuti izvi hazvirevi kuvanhu vose vane autism zvakare kupfuura iyo inoshanda kumunhu wese ane chirwere chepfungwa. Chechipiri, ngatitendei kuti ndeyechokwadi kune vanhu vazhinji, uye kuti pane boka revanhu varikugovana zviitiko izvi-hausi wega.
Chechitatu, chibvumira kuti chisimbise chinangwa chako-kuti iwe uri wega autistic, mubereki, kana unyanzvi-semubatanidzwa wehukama muukama, kumutsa ruzivo rwevamwe kuratidzira ruremekedzo, ruremekedzo, nekuremekedza vamwe pasina miganhu dzakadai sekusarura uye kusagadzikana, kutonga kwemasimba. Uye pakupedzisira, tsigira munhu wacho kuti aone kuti hupenyu hwake hahuna chinangwa; kuti iye anodiwa, uye kuti chipo chake chinotanga muHasimba Rokudenga-kwete chimwe chinhu chinotyisa; uye kuti isu tose tine mishandira yekushandisa zvipo zvedu uye matarenda kuitira kuti tive akanaka uye makuru kune vamwe.
Mubvunzo: Ndeapi mapurogiramu enyu anouya, uye vanhu vangaita sei newe pamusoro pavo?
Mhinduro: Ndiri mukugadzirisa kwekutanga-nyika yose autism self-advocacy coalition, pano muPennsylvania. Takatosimbiswa kubvira muna March 2006 pamwe nevamiririri pamitambo iri munzvimbo ino; ikozvino tichave tichibatsirana kuti tibatane-autism kudzidziswa chirongwa kune vashandi vehutano hwepfungwa vanotsigira vana uye vechidiki vane autism.
Iine mukana wekudzokororwa munyika yose. Tiri kurongawo musangano wekutanga weva autism unongoratidzwa chete-kana kuti-unoburitswa-vanhu vane autism mukuedza kudzidzisa vamwe kubva "mukati-kunze."
A documentary based on Autism uye Mwari Connection iri mukuvandudzika zvakare.
Ndakatarirwa mwedzi yakawanda bhuku risati rabudiswa nemumhanzi wechidiki wemagetsi mufirimu, Teo Zagar, uyo akashandura firimu yakaisvonaka inonzi Mind Games, nhau yorudo nezvechiremba ane chirwere chinoparadza uye chinopera uyo akazvidavirira mumweya kuti ave noupenyu hwakareba kupfuura iye chinangwa. Izvozvo zvinotora makore maviri ekuronga, kugadzirira, uye pa-site yekugadzirwa.
Uye ndiri kunyora bhuku rekutevera kuAustism uye naMwari Connection iyo inoratidzira zvimwe zvechando chechando; Ndinoronga kuongororazve pfungwa dziri mubhuku rekutanga, asi fungisisa zvakadzama. Somuenzaniso, kana mamwe magetsi anokwanisa kutaurirana nemhuka, chaizvoizvo mhuka dzinorevei uye kuti izvi zvingakanganisa sei isu tose.
Vavengi vako vanogara vachigamuchirwa kuti vaone neni kuburikidza newebsite yangu. Ndinokutendai nemukana wekukurukura basa rangu nekutsvakurudza!