METAvivor and Groups Groups for Metastatic Breast Cancer Patients

METAvivor Peer Peer Mazano Okutsigira Mazana ose ari muUnited States. Vanounza nyaradzo, rubatsiro, uye ushamwari kune vakadzi nevarume vari kurarama nekenza yemasitamende yepabonde (MBC), iyo inowanzonzi seState IV yepamuti yepamu . Kenza yavo yakapararira mberi kwechifu kune nhengo dziri kure. Haisi kupora. Mishonga, iyo iri kuenderera mberi, iri kudurura mumuviri, mupfungwa uye mune zvemari.

Vezera rekutarisa mapoka ekutsigira mapepa inonyanya kukosha varwere vezvemastrasi kwete kwete sechikonzero chekutsigirwa , asi kuderedza kusarudzwa kazhinji kacho kune avo vane chirwere chemasastatic.

METAvivor Groups Support

Boka roga roga rine mutungamiri akadzidziswa uye ane kenza yepamusoro yepabonde. Mapoka ega ega anouya pamwe chete munzvimbo dzomunharaunda -dzakarongeka , munyika yose, achiziva kuti mumwe nomumwe weboka ravo anonzwisisa zvinorehwa kuva nechirwere chemasastatic. Ikoko kune zororo mukuziva kuti, muboka iri, hapana chikonzero chekutsanangura zvauri kuitika. Nhengo imwe neimwe inogona kuziva nekusigira.

Boka roga roga remunharaunda rinoungana pamwe chete mumamiriro ezvinhu asiri ezvokurapa zvakadai sekushamba kwekofi, maresitorendi, nedzimwe nzvimbo dzese dzakasununguka uye dzinopa nyore nyore kumapoka eboka. Misangano inogona kusanganisira mutauriri wevaenzi, uye, pane dzimwe nguva, chiitiko chinokosha chinogona kuva chikamu cheboka rekutsigira vezera.

Hapana muganhu pane urefu hwenguva yemusangano weboka rimwe nerimwe, uye misangano yakawanda inenge inenge maawa maviri.

METAvivor yakavakwa kune avo vanorarama nekenza yemasitamende yepabonde. Sangano rinotarisa kutsvakurudza. Basa ravo, sezvakatsanangurwa mumabhuku avo, nderokuti:

1. Kuwedzera ruzivo pamusoro pekuparadzana kwemari kunoshandiswa kwenguva pfupi-kutsvaga kutsvaga kwemasastasis munyika yekenza, nekubhadhara zvakananga rudzi rwekutsvakurudza ikozvino kusina.

1. Nechinangwa chekutanga chekuwedzera hupenyu uye kugumisa kufa kubva kuMDC, METAvivor zvikwereti zvipo zvezvikwata zvekutsvakurudza zvinogona kuchinja MBC kubva kune chirwere chekugumira kusvika kune chirwere chisingaperi chine uhu hwakanaka hwehupenyu.

Kukosha Kwokuda Kuda Mapoka Okutsigira

Vatachiona veMetastatic vanowanzoreva nezvezvinetso mukupinda kumapoka ekusimbisa kenza yebonde izvo zvinogona kunge zviripo mumisha yavo yekumba. Zvine zvakasiyana siyana zvinotsigirwa kune avo vanobatwa pamatanha emvere ekutanga.

Vatachiona veMetastatic vangasave vachinzwa vakagamuchirwa mumapoka ayo anonyanya kupinda nevakadzi nevarume vakaonekwa kuti vane chirwere chekare chepamuviri; vanogona kunzwa sokuti chirwere chavo chemasastatic chinotyisa kune vamwe vari muboka. Vangave vakarurama; vazhinji vedu tinorwara nekenza yemukomana wekutanga. Kutya kudzokorora kunogona kuita kuti isu tive netastatic.

Vakadzi nevarume vane chirwere chemasastatic vanogona kunzwa kuti havagoni kutaurirana nezvezvinhu zvevaya vane chirwere chisina nguva-uye avo vanofananidza zvakasiyana zvikuru nevana vavo. Vanogonawo kunzwa kuti mapoka aya haasati awana zvido zvavo sevatachiona vepachifu chemazamu.

Izvo hazvina zvakawanda zvekutsigira mapoka anongotarisa chete nyaya uye zvinetso zvevaya vanorarama nekenza yepamusikirwo yemasasa.

Aya mapoka angave ane mazita okurinda uye ave nenguva-asingakwanisi. Inogona kuitiswa nenzira isingabvumiri kupa pachena uye kutora ruzivo rwakakosha kune mumwe munhu ane chirwere chetachiona. Nyaya yakakura nevakawanda vemapoka aya ndeyekuti havatungamirirwi nemumwe munhu ari kurwara nechirwere chakafanana. Hazvina mhosva kuti mutungamiri akadaro anorevei, haagoni kunyatsoziva kana kunzwisisa manzwiro nemamiriro ezvinhu ari chikamu chekuva nechirwere chisingaregi.

Vaya vachangobva kutungamirirwa, vezera rekutarisa mapoka ekutsigira vanotungamirirwa mushure meboka rinotsigira rakatanga muna 2007, muAnnapolis, Maryland ne "CJ" Corneliussen-James.

CJ yakaongororwa kuti ine kenza yemazamu muna 2004. Chirwere chekenza chake chakagadziriswa muna 2006. Paaida uye aida kuenda kune rimwe boka rekutsigira kune vane kenza yemasasa, haana kuwana boka rakasangana naro. Saka, akateya imwe.

Makore maviri gare gare, iye nevanasikana vatatu vechikadzi, avo vaive nekenza yemasasa, vakaungana kuti vawane METAvisor, iyo yakava sangano risina maturo muna 2009. CJ ndiyo chete inopona nheyo. Anoshanda seMutungamiriri weMETAvivor; uye seMutungamiri weAvocacy.

Vezera revezera Rwokutsigira Mauto Mutungamiri Wekudzidzisa

Muna 2016, METAvivor akaisa ruzivo kuna Avon, iyo yakabhadharwa nekutsigirwa kwekugadzira chirongwa chekudzidzisa vatungamiri veboka chaizovagadzirira kutanga uye kutarisira boka munzvimbo yavo yenyika. Ive Shamwari Yokuona Rutsigiro Rutevedzeri Vanotungamirirwa neVatungamiri vanobatanidza purogiramu yekudzidzisa yakadzidziswa neCJ uye inosanganisira: gwaro rekudzidzisa iro rinogona kubudiswa, firitsi inogona kushandiswa kuzivisa boka racho, uye chimiro chitsva chekunyora. Rimwe boka reChishanu rakavharwa revatungamiri vevezera rinovapa nzvimbo yekugovana mazano nematambudziko kune mumwe nemumwe.

Mutungamiri wekudzidzisa unosanganisira mharidzo inobva kuCJ inotsanangura zvikonzero zvezvibatsiro zvekutarisa mapoka ekutsigira, vachiti:

"Sezvo munhu wose ane MBC achiziva, vanhu vasiri varwere veGumbo IV vangasanzwisisa, kana kunyange vakambonzwa, metastasis uye zvinorevei. Apo patinoda kutaura pamusoro peMate nevanhu vakawanda, zvinowanzoitika mhinduro ndeyokuti 'Mets? Chii ichocho?' kana kuti 'Huh?' Saka, apo patinowana vamwe vaMDC-kana kuburikidza kuburikidza kupinda misangano, kushamwaridzana navanachiremba vedu, kana mune dzimwe nzira-tinofema kugomera kwekusununguka kwatakazowana mumwe munhu anonzwisisa zvatiri kuitika, uye zvatiri kutaura about. Kuva akakwanisa kunzwa manzwiro iwayo ekunzwisisa nguva dzose ndeyekushamisa-uye kunokosha. Ichi ndicho chikonzero MBC masangano ekutsigira akadikanwa. Pane imwe nzvimbo muguta rako rekumusha, kunze kwenzvimbo inocology, ungawana here vanhu vanoziva kuti metastasis chii?

Rutsigiro rwevezera revezera rine ruzivo rwakasiyana. Vanopa mukana weku:

1. Gadzira denderedzwa yevamwe vekune dzimwe nyika vanonzwisisa MBC uye vanogona kupa mazano anokosha uye rubatsiro.
2. Buda panze, ureruke uye kurukura nyaya dzeMDC neavo vasingangonzwisisi chete asi vanofarira kufarira nyaya yacho.
3. Dzorera chinhu chisina kunaka mukunzwisisa kuburikidza nekushandura kwako kuti uite mutsauko muupenyu hwevamwe ne MBC.
4. Taura pamusoro pezvipatara zveMMC, migumisiro, nezvimwe zviitiko zvezvehutano kunze kwekuti iwe ugare uchitaura uye unotsanangura.
5. Kuchema zvisinganzwisisi zvinyorwa zvevanhu, ivai neBMC yemafuta kunakidzwa, uye kuseka pamusoro pezvinhu zvinoshungurudza murume mumugwagwa paanenge achinyatsonzwisisa. "

Vatungamiri veboka vose vanozvipira, mumwe nomumwe anotora basa rokuronga misangano nguva dzose kune nhengo, achivapa mikana yekuuya pamwe mumamiriro ezvinhu akanaka uye akagamuchirwa.

Enda kune METAvivor kana iwe uchida kubatana neboka, rongororai rondedzero yezvikwata zvemazuva ano uye vatungamiri veboka ravo, kana kushanda kuti mutungamiri weboka.

_Kunobva:

_{"CJ" Corneliussen-James, Mutungamiri neMutungamiri weUkubatsira, METAvivor, metavivor.org}