Nzira yekugadzirira kurapwa kwako nekurapa kana uine cystic fibrosis
Kana iwe une cystic fibrosis (CF) uye uri kutarisa kuti uwane pamuviri, zvakakosha kuziva kuti kune vakadzi vanogara neCF vane mimba isina kuoma uye vanopa vana vane utano hwakanaka. Kuti uwedzere mikana yako yekuve nepamuviri hwakanaka, zvinokosha kuronga kubata kwako nekushanda nachiremba wako kuti akuongorore iwe nehutano hwemwana wako munzira.
Usati waita pamuviri , unofanirwa kuva nehutano hwakanaka, uve pane zvaunoda kuyerwa, uye uve ne40 muzana mapapu. Iwe usati waita pamuviri, wako wako anofanira kuedza kuongororwa kwepabonde kuti aone kana akatakura geni re cystic fibrosis . Kana mumwe wako achitakura geni, une 50 mukana yepamuviri yekuva nemwana ane cystic fibrosis. Kana mumwe wako asingatakuri gene, mwana wako haazove nemamiriro acho.
Kuita kuti hutano hwako huve hwakanaka uye husinganetseki sezvinobvira, vanachiremba vanokurudzira kuita zvinotevera:
1. Chengetedza Kudya Zvakakwana
Zvokudya zvemuviri wako zvinoda kuwedzerwa panguva yekuzvitakura. Kuti uite zvido izvi, iwe uchada kutora zvimwe zvinowedzera, zvakadai sekudya kunovaka muviri, kuti uve nechokwadi chokuti muviri wako unowana ma calori inoda. Kana iwe usingakwanisi kuwana chikafu chaunoda kubva kune zvekudya uye zvekuwedzera, iwe unogona kuenda kuchipatara kuti uwane kudya kwakakwana, kunonzi huwandu hwevana parenteral nutrition (TPN), kuburikidza nehurefu hurefu hunozivikanwa sepamusoro.
2. Kurwisa Utachiona hweHupfuri Zvishoma
Zvirwere zvekupemhaira zvinofanira kurapwa nemishonga inorwisa mabhakitiriya pakarepo chiratidzo chekutanga chichioneka. Zvirwere zvinogona kubuda nokukurumidza kana uine CF uye unogona kuderedza kuwanda kwe okisijeni kunopiwa mumuviri wako. Low oksijeni haisi chinetso kwauri chete, zvinogona kukuvadza mwana wako sezvo iye ari kuverenga pamusoro pako kuti asangane nemhepo yavo inoda.
3. Pfuurira Chest Physiotherapy (CPT)
Chifuyo chepiotherapy chikamu chinokosha chekurapa kwako kwezuva nezuva uye chinofanira kuitwa kana iwe uri nepamuviri. Kana yaitwa zvakanaka, haizokuvadzi mwana wako.
4. Rambai Mishonga yenyu yeCF
Nyaya yakawanda yemuromo uye yakanyonganiswa nemishonga inosangana neCF yakachengeteka kutora panguva yekuzvitakura. Kurukurai chero mishonga ipi zvayo yaunenge uchitora neCF yako chiremba uye chiremba. Nokuongorora mishonga yako yemishonga pamwe neboka rako rezvechiremba, vanachiremba vako vanogona kusarudza kana kuchinjwa kupi kudikanwa.
5. Gadzirira Kugadzirira Chipatara
Iwe unogona kunge uchida kugara muchipatara kwechinguva paunenge uchitakura kurapwa kana kutarisa. Izvi zvinowanzoitika mukati memwedzi mitatu yekupedzisira yehutano hwako apo zvinoda pamuviri wako ndizvo zvakakwirira.
6. Sarudza Kana Uchida Kuberekwa
Kana iwe uchida kunwisa mwana wako uye mukaka wako une zvakakwana zveproteine uye sodium, iwe unogona. Kana iwe ukasarudza kunwisa, iwe uchada kusangana neunyanzvi wako wekudya kuti upe urongwa huchapa huwandu huwandu hwekoriyamu iwe nemwana wako.
7. Rongedza Ramangwana
Pasinei nokufambira mberi mukurapa, cystic fibrosis inogona kupfupisa upenyu hwako. Ivhareji yekutarisira upenyu kwevanhu vane CF muUnited States inenge makore makumi mana.
Hazvina kufadza kufunga nezvekugona kwekusagona kukwidza mwana wako kuti ave munhu mukuru, asi zvinogona kunge iwe unofanirwa kufunga. Iwe unofanirwa kukurukura izvi zvichida nemumwe wako uye tanga kuronga zvirongwa zvekutarisira mwana wako nekukurumidza.
Mukuwedzera pakushandisa mishonga nemishonga yekurapa chirwere chako, iwe unogonawo kufunga kutora kupemha kwepapu. Havasi vose vane CF vanofanirwa kuwedzerwa, asi avo vanoita vanogona kukwanisa kuwedzera upenyu hwavo. Kuisa mapapu kune ngozi, asi kunogona kukupa mukana wekuvandudza utano hwako nekuwedzera hupenyu hwako. Kusvika ikozvino, vanopfuura 1600 CF varwere vakagamuchira kuputika kwemapapu.
Vanenge 150 kusvika ku200 vanhu vane cystic fibrosis vakagamuchira kuputika kwemapapu gore roga roga kubva muna 2007. Vazhinji vavo vakanga vachiri kurarama gore rimwe gare gare uye hafu yevakange vachiri kuita zvakanaka makore mashanu mushure mekugadzirwa.
Sources
- Calderwood, C. naNelson-Piercy, C. "Asthma neCystic Fibrosis mukudzivirira". Women's Health Medicine. 2005. 2: 29-32
- Cheng EY, Goss CH, McKone, EF, Galic V., Debley CK, Tonelli, MR uye Aitken ML "Kushungurudza Kuberekwa Kwekuberekwa Kunobatsira Mukubudirira kweUkuberekwa Fetal Outcomes muCF Women." 2006 Journal of Cystic Fibrosis 5:85 - 91.
- Cystic Fibrosis Foundation. NezveCystic Fibrosis. 2016.