Kusvika kuGrips neUkuvhiya Kwakawanda Kukura Kwekurota Colitis
Ulcerative Colitis Matongo Mazororo angu
Yaiva munaOctober muna 1998, uye ini nomurume wangu takanga tichienda kuDisney World muFlorida. Akanga achipa mharidzo pamusangano, uye ndaive ndichiuya nokuda kwekutasva-uye kuona Mickey, hongu.
Apo takanga tiri kuDisney ndakapedza nguva yakawanda ndichimhanya kune dzimwe dzimba nekuda kweronda rangu rekuonda.
Ndinofara, ndaive nebhuku rakarongedza paki imwe neimwe zvakanaka. Pamabhazi kuenda uye kubva kuhotera, ndaive kazhinji ndiri muhope, ndichifunga kuti handidi "kuenda" tisati tasvika kwatiri. Kanopfuura kamwechete ini nemurume wangu taifanira kubva bhazi pane imwe nzvimbo yekushanyira kuitira kuti ndigone kushandisa zvivako ikoko. Takava nemufaro, asi zvakanga zvakaoma nguva dzose kushamisika kuti chivako chinotevera chaiva chei. Ndainetseka kuti ndiri kuparadza rwendo rwemurume wangu.
Dzokera kuChokwadi ...
Apo patakadzokera kumusha, ndakagadzirira kusangana neine gastroenterologist itsva. Sezvo yakanga yakatora nguva yakareba kubva pakupedzisira kwangu colonoscopy , akaronga imwe pakarepo.
Handiyeuki chinhu kubva pamuedzo chaiwo (thank goodness). Chinhu chokutanga chandinoyeuka kutarisa chiso chechiremba wangu paakazodzokera kunzvimbo yekudzorera kuzokurukura mhinduro dzangu. Akaratidzika seainge aona mweya, uye akandiudza kuti kanda yangu yakanga yakazara nemapuropu.
Yakanga yakaipa kwazvo, ainetseka kuti ndakanga ndatova nekenza yekoloni , uye aizoda kukurudzira kuvhiyiwa pakarepo. Ini, mumamiriro angu akadhakwa, ndakabva ndatanga kuchema ndikamubvunza kana aireva chirwere chechipiri chechi -pouch , uye akasimbisa kuti akazviita.
Akamhanyira mapepa aya, uye ndisati ndabva, takaona kuti mapepa akanga asina kenza.
Kwete, zvakadaro. Vakanga vachiratidza zviratidzo zveDysplasia , iyo inogona kuva inopedzisira kune kenza. My colon inogona kuchinja kenza, uye inogona kunge isina.
Zvisarudzo, Zvisarudzo
Ini zvino ndakanga ndava nesarudzo dzakaoma kuti ndiite. Ndakanga ndisingadi kuvhiyiwa, asi yakaratidza kuti ndiyo nzira yakanakisisa yekuita, sezvo mutsara wangu unogona kuchinja kenza mumwedzi mitatu inotevera. Ndaifanira kusarudza chirwere chepi, uye kupi kwandakanga ndichienda kuti ndiite.
Ndakabvunza vanachiremba vaviri vakasiyana-siyana. Vaiva neropafadzo pane zvipatara zvakasiyana, uye vakanga vane maonero akasiyana pamusoro pemhosva yangu. Chiremba wokutanga chiremba ndakaona kuti aigona kundipa j-poch muchitsiko chimwe chete nekuda kwehuduku hwangu uye humwe hutano hwakanaka. Izvi zvairemekedzwa zvikuru kwandiri, asi ndakanga ndisina chokwadi, sezvo ndakanga ndaverenga rimwe danho rinotakura rinotakura njodzi dzakawanda dzezvinetso dzakadai se pouchitis .
Chiremba wechipiri akarayira nzira mbiri. Pazera remakore makumi maviri nemashanu, hakuna munhu anoda kuvhiyiwa maviri mumwedzi mitatu, asi ndakasarudza kuzviita. Ndaida kuti chinhu ichi chiite zvakanaka, uye dai ndaifanira kutsungirira kurwadziwa uye kusuruvara kuitira kuti ndive noupenyu huri nani mune ramangwana, izvo zvakanga zvakanaka neni.
Nhanho Yokutanga
Kuti ndizvigadzirire ini yeeostomy dzenguva duku , ndaiverenga zvose zvandaigona kutora maoko angu pamusoro pekuita.
Ndakasangana nemumwe mukoti weE ET , uye akatsanangura zvakawanda nezvekuchengetedza yeeostomy yangu. Akachera mimba yangu, takasarudza kuti stoma inofanira kunge yakavakirwa sei panguvo dzangu uye mararamiro angu, uye akaiisa mudumbu rangu neinki risingakanganwiki. Akandipa sampu ostomy set-up, saka ndaizozviziva. Pandakasvika kumba ndakaramba ndiri pamimba pangu pamusoro pe "stoma" yangu, kuti ndione kuti yaizonzwa sei.
Kuvhiya kokutanga kwaiva colectionomy yakakwana uye kusikwa kwe j-pouch uye ileostomy yenguva pfupi. Ndakapedza mazuva mashanu ndiri muchipatara ndikauya kumba nehomwe yakazara nemishonga inosanganisira painkillers, antibiotics, uye prednisone .
Ndakanga ndine mukoti anoshanyira kuuya kumba kwangu kundibatsira kuti ndichinje kushandiswa kwangu. Saka, yekutanga katatu ndakarishandura ndaive nerubatsiro. Nguva yechitatu ndakazviita ini uye mukoti akatarisira. Ndinofanira kunge ndakaita basa rakanaka nokuti handina kumbobvira ndava nokudonha kwemwedzi mitatu yose ndaive neosteostomy.
Zvakanga zviri nyore kwandiri kuti ndigamuchire bhegi nokuti ndaiziva kuti yaiva yenguva pfupi. Ndakazviwana kuti zvive zvinonakidza kudarika zvinotyisa kana zvakakomba (mushure memakore gumi nemaronda ekuronda, pane zvishoma zvingangondisema ini). Chikamu chakanakisisa pamusoro pehogi chaiva rusununguko kubva muimba yekunze! Ndaikwanisa kuenda kumisika uye ndisingafungi kuti imba yekushambidzira yaiva pedyo yaiva maviri pasi, uye ini ndaigona kuenda kune rimwe firimu uye ndisingafaniri kusimuka pakati. Amai vangu vakanditora kuti ndiwane manicure kokutanga muhupenyu hwangu, uye handina kumbofanira kunetseka nezvehutachiona hwekurwadziwa kwondipa dambudziko. Zvaishamisa, uye kana ndaifanira kuva nehomwe, iyo yaiva pfupi shoma kwandiri yekuripa.
Yechipiri Chikamu
Kunyange zvazvo ndakanga ndava kunakidzwa noupenyu, ndakanga ndichiri kuda kuramba ndichienda kune rimwe danho rakatevera uye ndakatora j-chikwama changu chakabatanidzwa. Zvakaitika kwandiri neayoostomy zvakandiratidza kuti zvakanga zvisingadzvinyiriri uye zvinotyisa, uye ndaigona kuva nehupenyu hwakanaka dai ndaifanira kudzokera kuneoostomy rimwe zuva.
Ndakanga ndichitya kwazvo kuisa gurney, ndichimirira kuti vandiendese kuvhiyiwa. Ndainzwa zvakanaka, uye kuzviisa pasi kumarwadzo akawanda kwakatanga kuonekwa seusina. Kuvhiyiwa kwangu kwakanonoka kwemaawa mashomanana nekuda kwekukurumidzira. Ndinofara, ndakanga ndapera simba kubva mukudzvinyirirwa ini pakupedzisira ndakavata, uye chinhu chinotevera ndaiziva kuti vakanga vari kundivhiya kuvhiya. Vanamukoti vaifadza uye vakaita majee saka ndaisazovhunduka.
Pandakamuka ndikava nemumwe mukoti anoshamisa mukudzoka uyo akawana kurwadziwa kwangu pasi pakarepo, uye ndakatumirwa kukamuri rangu. Apo pandakange ndichiziva zvakakwana, chinhu chekutanga chandakaita ndechokunzwa mimba yangu uye kutarisa kuti ndive nechokwadi chokuti bhegi rakanga raenda!
Ndakanga ndiri mukutambudzika kwakanyanya kudarika shure kwekutanga kwekutanga. Zvakatora hura hwangu mazuva maviri kuti amuke. Yakanga iri nguva inotyisa, ndakanga ndisingakwanisi kuva nechikafu, uye ndakaramba ndichienda muimba yekugezera uye ndichiedza kutamisa hura hwangu, asi hapana chaizouya. Ndakatanga kuvhiringidzwa, uye ndakaora mwoyo zvikuru uye ndinonetseka. Pakupedzisira, shure kwezvandaiita kwandiri zvakaita sekusingaperi, ndakakwanisa kutamisa hura hwangu! Asati abva usiku ihwohwo murume wangu akaita kuti ndive nechitsiko chemvura yakachena, uye mangwanani akatevera ndakawana zvokudya zvakasimba. Masikati iwayo ndakaenda kumusha.
Ikozvino uye Ramangwana
Pashure pegore ne j-pouch, ndakanga ndichiri kuita zvakanaka chaizvo. Ndinogona kudya chero chinhu chipi nechipi chandinoda (mukati mekufunga), uye ini ndinenge ndisina kumboita chirwere. Ndakabvisa chikwama changu kanenge ka 4-6 pazuva, kana pese pandinenge ndiri muimba yekuzorora kuti ndidzoke (nechingwa changu chiduku chinenge maawa maviri). Kana ndikadya chimwe chinhu chinotapira Ndinogona kuve nokupisa apo ini ndichishandisa imba yekudya, asi hazvina kufanana nemavhumu uye kupisa kwandakaita neUC.
Dzimwe nguva ndine izvo zvinonzi 'kuputika' kufamba, asi izvi hazvisi zvakasiyana pane pandakanga ndine UC. Chaizvoizvo, hazvirevi dambudziko iye zvino nokuti ndinogona kuzvidzora, uye hazvina kurwadza. Handina kumbofanira kuita dash madhim kuimba yekugara kubvira ndisati ndatanga kuvhiyiwa.
Mune ramangwana, ndinotarisira kuramba ndichiita zvinhu zvandaitya kuti handingazoiti. Yange iri nguva refu ichiuya, asi ndinofunga kuti pakupedzisira ndiyo nguva yangu yekuwana mufaro uye rusununguko kubva kune dzimwe nzvimbo.